← Return to MGRS (monoclonal gammopathy of renal significance): Let's connect

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Profile picture for eferezy @eferezy

Hi there,
I am a 34 y/o and was diagnosed with MGRS earlier this year. Discovered abnormal kidney labs on routine labs in January, subsequently had kidney biopsy and several other tests that confirmed MGRS. My subset is kappa light chain deposition disease. Started with Darzalex, Velcade, Dex, and Cyclophosphamide in March and have continued on that plan. Heading into stem cell transplant in August. It’s great to read through all of your comments, and find other patients with a similar diagnosis. Has anyone else here had a stem cell transplant? Thanks!

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Replies to "Hi there, I am a 34 y/o and was diagnosed with MGRS earlier this year. Discovered..."

Thinking about your comment. Have you had a bmb? I know some renal failure is considered CRAB, which can put it in Muliple Myeloma realm. I have anemia but it is not severe yet to be considered CRAB but we watch it closely. They thought I had MGUS until they did a bmb and it turns out I have smoldering. Thus I’m a big bmb proponent if indicated. All the best.