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Stage 4 likely - what are the treatment options if surgery is not one?

Posted by strongone21 @strongone21, Jul 7 5:26pm

Recently diagnosed from a PET scan that a large nodule, lymph node and some metastatic presence affecting tissues around spine and ribs. No symptoms at all other than a mild diaphragm area pain. With the metastatic nature I am worried about treatment options if removing nodule/lymph node will not help. Any experience from a stage 4 lung cancer in terms of survival rates? Please share any relevant experience that might help me. Thank you

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strongone21 | @strongone21 | Jul 21 8:29pm
In reply to @chebo1954 "I was treated for stage 4 lung cancer by iv every 2 weeks by an immunotherapy..." + (show)
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I was treated for stage 4 lung cancer by iv every 2 weeks by an immunotherapy drug called Optivo. I was told that it didn’t work for everyone but when it did it worked everywhere in the body and I have been alive since me diagnosis since 2016

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Wonderful! So happy that it worked for you @chebo1954.

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chebo1954 | @chebo1954 | Jul 22 3:29am

Thank you very much-kindness is in such short supply in the present day world we exist in

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Lisa, Volunteer Mentor | @lls8000 | Jul 24 2:01pm
In reply to @strongone21 "@mamajite Biomarkers result shows only KRAS G12D, for which there is no approved targeted therapy yet..." + (show)
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@mamajite Biomarkers result shows only KRAS G12D, for which there is no approved targeted therapy yet :(. Only pending is Tempus test which I am not sure if its going to change anything.

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@strongone21, I'm wishing you well. I'm sure this is a difficult time for you. Knowing that you have two doctors that agree on the treatment plan is reassuring. I found a few discussions and Connect members with KRAS G12D.
- @carlies, how has your treatment been going? https://connect.mayoclinic.org/discussion/anyone-with-kras-nsclc-andor-specifically-kras-g12d-treatment/
- @zora0121 has G12D mutation. @zora0121, did you have immunotherapy in addition to your chemo regimen?

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strongone21 | @strongone21 | Jul 25 3:15pm
In reply to @lls8000 "@strongone21, I'm wishing you well. I'm sure this is a difficult time for you. Knowing that..." + (show)
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@strongone21, I'm wishing you well. I'm sure this is a difficult time for you. Knowing that you have two doctors that agree on the treatment plan is reassuring. I found a few discussions and Connect members with KRAS G12D.
- @carlies, how has your treatment been going? https://connect.mayoclinic.org/discussion/anyone-with-kras-nsclc-andor-specifically-kras-g12d-treatment/
- @zora0121 has G12D mutation. @zora0121, did you have immunotherapy in addition to your chemo regimen?

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Thank you @lls8000! I will take a look at the discussions you noted. I am also watching Zoldonrasib which seems to be in clinical trial now for G12D.

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grandmakat5 | @grandmakat5 | Jul 26 4:58pm
In reply to @lls8000 "@strongone21, I'm wishing you well. I'm sure this is a difficult time for you. Knowing that..." + (show)
Profile picture for Lisa, Volunteer Mentor @lls8000

@strongone21, I'm wishing you well. I'm sure this is a difficult time for you. Knowing that you have two doctors that agree on the treatment plan is reassuring. I found a few discussions and Connect members with KRAS G12D.
- @carlies, how has your treatment been going? https://connect.mayoclinic.org/discussion/anyone-with-kras-nsclc-andor-specifically-kras-g12d-treatment/
- @zora0121 has G12D mutation. @zora0121, did you have immunotherapy in addition to your chemo regimen?

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I have the KRASG12C mutation and after my second y90 treatment for lung mets will start a new fda approved pill called KRAZATI I would call manufacturer or ask your doc if they have one for you! 🙏💖 they are coming up with new fda approved treatments all the time!

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strongone21 | @strongone21 | Jul 26 6:48pm
In reply to @grandmakat5 "I have the KRASG12C mutation and after my second y90 treatment for lung mets will start..." + (show)
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I have the KRASG12C mutation and after my second y90 treatment for lung mets will start a new fda approved pill called KRAZATI I would call manufacturer or ask your doc if they have one for you! 🙏💖 they are coming up with new fda approved treatments all the time!

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Good luck with your new med @grandmakat5!

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grandmakat5 | @grandmakat5 | Jul 27 12:12pm
In reply to @grandmakat5 "I have the KRASG12C mutation and after my second y90 treatment for lung mets will start..." + (show)
Profile picture for grandmakat5 @grandmakat5

I have the KRASG12C mutation and after my second y90 treatment for lung mets will start a new fda approved pill called KRAZATI I would call manufacturer or ask your doc if they have one for you! 🙏💖 they are coming up with new fda approved treatments all the time!

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I meant Y90 for liver mets! and ablation for small lungs mets!

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