Hi! When I first got cancer I was put on folfox and had an allergic reaction to the ox my 2nd round and had to stop. But I did get the cold sensitivity and neuropathy in my hands and feet. The second round I couldn’t walk for hours. Needed 2 people to get me to the car and walk me to my door and couch. Thank goodness my son is strong! I had a breathing issue and almost went into anaphylactic shock in the office. After an additional 10 rounds of just 5FU I went 8 months and then it recurred in my vaginal area and nodes. I now am on folfiri and get mouth sores and massive diarrhea but its a better trade I think. Will be on it for life as maintenance.
Interesting, I had a similar reaction (and also have a strong son and friend to get me in the house). My speech would become slurred and my hands looked like I had palsy for 4-5 hours. I did a bit of research and did find a case or two of people who had low potassium going into the treatment and had the same reaction. I ended up loading up on potassium pre-treatment. The reaction didn't go away but it improved a little.
I just finished my FOLFOX treatment (8 of 8). So far side effects have been annoying, but manageable. Have had cold sensitivity and tingling in hands and feet. I recommend acupuncture and physical therapy to help mitigate the effects. I also insisted on hydration when I went in to get the 5 FU pump disconnected. Nurses were initially encouraging me to do the disconnect, but I really didn’t want to do it. Extra hydration always helps and they flushed my port.
I am now looking at 5+ weeks of chemo radiation. I consulted with a pelvic floor physical therapist (who knew there was such a thing!) and will be continuing with acupuncture and general physical therapy.
I also recommend a general therapist, because as you know, dealing with this is A LOT!
I just did my first round of chemo and it was rough. Today is day 5 and I can actually get up and do some stuff. The stomach pains were horrible. Then constipation a day 5 the runs. Still can only eat soup in small portions. I can’t even imagine going thru 5 more. Does it get worse or better after each treatment.
Interesting, I had a similar reaction (and also have a strong son and friend to get me in the house). My speech would become slurred and my hands looked like I had palsy for 4-5 hours. I did a bit of research and did find a case or two of people who had low potassium going into the treatment and had the same reaction. I ended up loading up on potassium pre-treatment. The reaction didn't go away but it improved a little.
It was very scary. They thought it was in my mind but I couldn’t breath and so they gave my a shot of epinephrine and it cleared within seconds. Just too hypersensitive to everything I guess.
It was very scary. They thought it was in my mind but I couldn’t breath and so they gave my a shot of epinephrine and it cleared within seconds. Just too hypersensitive to everything I guess.
the nurses in the chemo lounge thought it was an allergy but the oncologist decided it was a neuro reaction, I researched to find the other cases where they determined it was related to low potassium.
Hi
I am on folfox and avastin regimen. I just finished my third chemo. I have not had the side effects you have. Mine have been ice sensitivity. and sore mouth and tongue. I hope you’re getting relief.
I just completed my 1st round also. I’m starting Day 4. I am feeling very rough, kind of like having the flu. I am usually up at 5, getting ready for work, but now wake up at 6 or 7, and takes quite a while before I feel like I’m actually awake and able to function. I will be working through this, no choice, and worked during my initial infusion. I also wear a pump for 46 hours after the initial infusion (worst part). I knew I would have bad days, but so far no good days. I can cross one off the calendar, though, and that’s a good thing!
Maybe a little encouragement here.
I just finished my third round.
After reading others posts, i took away a few key points.
Hydration if you can. Drink water! Also, get fluids after treatment, I now get a bag of iv when they remove my meds from my port.
Also dtay on top of nausea meds.
Listen to your body!!
Hope it helps!
Because of the cold sensitivity, I have found it very difficult to stay hydrated. I am 6 treatments in and drink a lot of broths and soups now. It is making a world of difference!
Because of the cold sensitivity, I have found it very difficult to stay hydrated. I am 6 treatments in and drink a lot of broths and soups now. It is making a world of difference!
I try to drink at least 70 ounces of water a day. After treatment, my cold sensitivity made even room temperature water was too cold, so I would microwave a glass of water for about 30 seconds to make it drinkable. Thankfully the cold sensitivity for my mouth only lasted for a few days after treatment.
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Interesting, I had a similar reaction (and also have a strong son and friend to get me in the house). My speech would become slurred and my hands looked like I had palsy for 4-5 hours. I did a bit of research and did find a case or two of people who had low potassium going into the treatment and had the same reaction. I ended up loading up on potassium pre-treatment. The reaction didn't go away but it improved a little.
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3 ReactionsThank you for sharing.
Im here starting round 3.
Round 2 was better but not fun.
Mostly nausea, fatigue.
Little appetite.
I eat small and often.
Hang in there!!!!
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3 ReactionsIt was very scary. They thought it was in my mind but I couldn’t breath and so they gave my a shot of epinephrine and it cleared within seconds. Just too hypersensitive to everything I guess.
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2 Reactionsthe nurses in the chemo lounge thought it was an allergy but the oncologist decided it was a neuro reaction, I researched to find the other cases where they determined it was related to low potassium.
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1 ReactionHi
I am on folfox and avastin regimen. I just finished my third chemo. I have not had the side effects you have. Mine have been ice sensitivity. and sore mouth and tongue. I hope you’re getting relief.
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1 ReactionI just completed my 1st round also. I’m starting Day 4. I am feeling very rough, kind of like having the flu. I am usually up at 5, getting ready for work, but now wake up at 6 or 7, and takes quite a while before I feel like I’m actually awake and able to function. I will be working through this, no choice, and worked during my initial infusion. I also wear a pump for 46 hours after the initial infusion (worst part). I knew I would have bad days, but so far no good days. I can cross one off the calendar, though, and that’s a good thing!
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Like -
Helpful -
Hug
3 ReactionsMaybe a little encouragement here.
I just finished my third round.
After reading others posts, i took away a few key points.
Hydration if you can. Drink water! Also, get fluids after treatment, I now get a bag of iv when they remove my meds from my port.
Also dtay on top of nausea meds.
Listen to your body!!
Hope it helps!
-
Like -
Helpful -
Hug
6 ReactionsBecause of the cold sensitivity, I have found it very difficult to stay hydrated. I am 6 treatments in and drink a lot of broths and soups now. It is making a world of difference!
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Like -
Helpful -
Hug
3 ReactionsI try to drink at least 70 ounces of water a day. After treatment, my cold sensitivity made even room temperature water was too cold, so I would microwave a glass of water for about 30 seconds to make it drinkable. Thankfully the cold sensitivity for my mouth only lasted for a few days after treatment.
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Helpful -
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