Folfox chemo: What side effects to expect?

Interesting, I had a similar reaction (and also have a strong son and friend to get me in the house). My speech would become slurred and my hands looked like I had palsy for 4-5 hours. I did a bit of research and did find a case or two of people who had low potassium going into the treatment and had the same reaction. I ended up loading up on potassium pre-treatment. The reaction didn't go away but it improved a little.

Thank you for sharing.

Im here starting round 3.
Round 2 was better but not fun.
Mostly nausea, fatigue.
Little appetite.
I eat small and often.
Hang in there!!!!

It was very scary. They thought it was in my mind but I couldn’t breath and so they gave my a shot of epinephrine and it cleared within seconds. Just too hypersensitive to everything I guess.

the nurses in the chemo lounge thought it was an allergy but the oncologist decided it was a neuro reaction, I researched to find the other cases where they determined it was related to low potassium.

Hi
I am on folfox and avastin regimen. I just finished my third chemo. I have not had the side effects you have. Mine have been ice sensitivity. and sore mouth and tongue. I hope you’re getting relief.

I just completed my 1st round also. I’m starting Day 4. I am feeling very rough, kind of like having the flu. I am usually up at 5, getting ready for work, but now wake up at 6 or 7, and takes quite a while before I feel like I’m actually awake and able to function. I will be working through this, no choice, and worked during my initial infusion. I also wear a pump for 46 hours after the initial infusion (worst part). I knew I would have bad days, but so far no good days. I can cross one off the calendar, though, and that’s a good thing!

Maybe a little encouragement here.
I just finished my third round.
After reading others posts, i took away a few key points.
Hydration if you can. Drink water! Also, get fluids after treatment, I now get a bag of iv when they remove my meds from my port.
Also dtay on top of nausea meds.
Listen to your body!!
Hope it helps!

Because of the cold sensitivity, I have found it very difficult to stay hydrated. I am 6 treatments in and drink a lot of broths and soups now. It is making a world of difference!

I try to drink at least 70 ounces of water a day. After treatment, my cold sensitivity made even room temperature water was too cold, so I would microwave a glass of water for about 30 seconds to make it drinkable. Thankfully the cold sensitivity for my mouth only lasted for a few days after treatment.