Folfox chemo regimen side effects.

I have neuropathy in my fingers and feet -- numbness more than anything else and feels like I have bandaids on my fingertips. With my feet I at times don't know where they are when I'm walking so I've stumbled and fallen a couple of times. I have not had any forearm cramping. I completed 11 rounds of chemo, and oncologist told me that the neuropathy I'm experiencing is likely permanent. My cancer is now stable after 11 rounds of FOLFOX, so I am on maintenance chemo which is much less time in the infusion clinic since the oxaliplatin was removed from the mix, sent home with the 5-FU chemo ball as before, but still have to go in every 2 weeks. I also experienced the cold intolerance in my throat and hands when on oxaliplatin.

Thank you, that was very helpful.
I can't imagine 11 treatments.
I've only completed two of eight and all this is new.

I just finished my FOLFOX treatment (8 of 8). So far side effects have been annoying, but manageable. Have had cold sensitivity and tingling in hands and feet. I recommend acupuncture and physical therapy to help mitigate the effects. I also insisted on hydration when I went in to get the 5 FU pump disconnected. Nurses were initially encouraging me to do the disconnect, but I really didn’t want to do it. Extra hydration always helps and they flushed my port.

I am now looking at 5+ weeks of chemo radiation. I consulted with a pelvic floor physical therapist (who knew there was such a thing!) and will be continuing with acupuncture and general physical therapy.

I also recommend a general therapist, because as you know, dealing with this is A LOT!

I too was experiencing intermittent lack of muscle control with my legs, feet, hands. Carried a walking stick everywhere just in case. Neuropathy was was bad enough that it hurt to use utensils to eat. My oncologist decreased my oxaliplatin by 50% my last treatment and I was a different person. I have asked about efficacy, and tomorrow's treatment will be at 75%. A balance is required 😊.

Taket treatments day by day I had 25 rad treatments and then 7 chemo It was a bitch especially the chemo But i am free of the cancer do ghve to come up every 3 months for check ups which is fine. I counted down the number chem treatments as they were tuff. Do have nero in hnads and feet I have founds that buyyoms on clothing is difficult to do takes a lot of extra time but if that makes me free of this sneaky cancer disease I can handle it Never thought I would make it but I did and feel great You may not believe me, which I didnot at first, you will make it

Hi! When I first got cancer I was put on folfox and had an allergic reaction to the ox my 2nd round and had to stop. But I did get the cold sensitivity and neuropathy in my hands and feet. The second round I couldn’t walk for hours. Needed 2 people to get me to the car and walk me to my door and couch. Thank goodness my son is strong! I had a breathing issue and almost went into anaphylactic shock in the office. After an additional 10 rounds of just 5FU I went 8 months and then it recurred in my vaginal area and nodes. I now am on folfiri and get mouth sores and massive diarrhea but its a better trade I think. Will be on it for life as maintenance.

I just did my first round of chemo and it was rough. Today is day 5 and I can actually get up and do some stuff. The stomach pains were horrible. Then constipation a day 5 the runs. Still can only eat soup in small portions. I can’t even imagine going thru 5 more. Does it get worse or better after each treatment.

you will have many ups and down but there is lite at the end of the tunnel Change your diet that foods that help with loose stools and rock hard turds Lomidinde also helps but sometimes it made my stools too hard and painful to pass So I used different types of foods to help Goggle foods to help loose stools etc. it's a ruff road but I am alive and I did not think all these drugs & chemo would work as my whole life I have always been last in life but this time I got to step to the front of the line. DOn't feel sorry for yourself cancer just happens you can beat this ^&* of a disease go do something I still had to run my farm it was very tuff lots of breathing breaks but I got the stuff done go clean a closed wash a window scrub the bathtub just do something no matter how simple it is. Don't feel sorry for yourself And I had to do this by myself as my husband was killed in the middle of my treatments but I can say I am a cancer survior and you will also get to say that

Yes.
Tingling and numbness in hands and feet are known side effects. If you have coldness side effects, you can wear gloves when handling cold objects.

However, even if you have known side effects, let your doctor know, so Dr can follow up. Be sure to mention any side effects, and keep him informed re cramps and hands, and any others, and if they’ve grown worse. Important for doctors to know in case a dosage adjustment is necessary.

Everyone is different, which is why it’s important to keep doctor informed re side effects.