Thank you for your clarification, I’ve had my 4th Reclast last November. I was never made aware of the water excess and Claritin you need to take with that other drug you mentioned.
I have osteoporosis and osteopenia. In four years I have broken 3 ribs on my left side just by banging them on my cat’s scratching post
And 2 ribs on my right side as of this week.in rehab right now with a fall walking in Rehab, waiting for foot X-ray.
Teeth problems as of right now, that Cannot be pulled because of Reclast
My first break was my foot when I was in my 20’s.
Any good suggestions ? Thank you!!!!
Sometimes I wonder if the drugs help or whether it's good luck or genes. So sorry to hear about your broken ribs. Haven't experienced that yet but did fracture my pelvis years ago. Hate having someone ask what's your pain from 1 to 10 so now I use the pelvis as my upper end.
My endocrinologist keeps telling me I have osteoporosis; my response is "maybe".
Her conclusion is based on the -2.5 value at L2. L2 just happens to be where my spine takes a significant lateral bend because of my scoliosis. Standing up straight as my mother was always reminding me, has my left shoulder looking 1.5 inch lower than the right. Doc says the computer adjusts for the turn at L2 but alas I don't believe that happens. At an active 79 (still skiing) I've become more cynical and sometimes blow off what I'm told by the "experts" of which there are non in the Houston area. So good luck. I've learned so much from the knowledgeable women in this group that I think my PCP would like to get rid of me since I question everything. Friday she suggested that since I was pretty up to date on the subject, I should just pick city with good bone options and make my appointment there. Maybe so.
Boy. I sure wish I got diagnosed with mine earlier cuz I would've been on a bone building drug 5 yrs ago cuz now I have 8 compression fractures and im 68 now but been active with biking, walking ,fitness center . Had no clue--So my opinion is get on something to build bone before something like a fracture happens bc it has ruined my life in a snap of a finger after lifting something heavy. Just a thought.
While many seek meds , they are not the only solution…take great care before taking them…make sure there won’t be negative drug interactions. Tell your doctors immediately of bad side effects—they should listen and guide you carefully.
I received my first infusion of Recast last August, and when I had my bone scan a couple of months ago, there was no improvement, but apparently my osteoporosis has not improved, but it has not gotten better. I was sure the PA who I had been seeing said there could be improvement, but ow she says no!? I'm about to do my second dose and I wonder if anyone has experienced any improvement or if I could consider switching to another treatment? When I initially looked into treatment she had really been pushing Forteo, but my insurance didn't cover it. Not sure if that would improve my condition either?
Thanks!
I received my first infusion of Recast last August, and when I had my bone scan a couple of months ago, there was no improvement, but apparently my osteoporosis has not improved, but it has not gotten better. I was sure the PA who I had been seeing said there could be improvement, but ow she says no!? I'm about to do my second dose and I wonder if anyone has experienced any improvement or if I could consider switching to another treatment? When I initially looked into treatment she had really been pushing Forteo, but my insurance didn't cover it. Not sure if that would improve my condition either?
Thanks!
Hello, I had 3 infusions of Reclast in 2016, 2017 & 2018 at the Mayo Clinic. I needed to stop the progression of the osteoporosis and since I had side affects from oral medications I decided to try Reclast. I was told it would not improve my bone density but hopefully stop the progression. My doctor was just as amazed as I was that it reversed my osteoporosis to osteopenia and that was confirmed again with my last bone density scan in March 2025. Each person is different and for whatever the reason I had amazing results with this treatment.
Hello, I had 3 infusions of Reclast in 2016, 2017 & 2018 at the Mayo Clinic. I needed to stop the progression of the osteoporosis and since I had side affects from oral medications I decided to try Reclast. I was told it would not improve my bone density but hopefully stop the progression. My doctor was just as amazed as I was that it reversed my osteoporosis to osteopenia and that was confirmed again with my last bone density scan in March 2025. Each person is different and for whatever the reason I had amazing results with this treatment.
Wow! I guess miracles do happen!
So, you won’t have any additional treatments? Was there anything else that you did while you were having the reclast infusions?
Wow! I guess miracles do happen!
So, you won’t have any additional treatments? Was there anything else that you did while you were having the reclast infusions?
If the osteopenia reverts back to osteoporosis I will most likely have to have the Reclast treatments again. I didn't do anything else as far as medications but I make sure I get enough calcium. I also have osteoarthritis so I did have two knee replacement surgeries at the Mayo Clinic. Bone health is very important for me and I also take vitamin D supplements since I'm chronically low with my levels.
I understand you to say that your 'bone break down rate' is measured by a simple blood test. What precisely is the name of this blood test?
It is inspiring to hear that there might be a measurable goal in treating osteoporosis that is not connected to a DEXA score. DO you also get annual DEXA scores and if so, would you mind sharing your last scores and whether there is a correlation between that score and your 'bone break down rate?'
Best of luck in continuing your treatment of osteoporosis. Thanx for the information.
Thank you so very much for this info. Very kind of you to remember.
McCormick's Great Bones discusses this test and I will make time to read and understand it later today.
Your T-scores look quite good.
Hope you do not mind my asking but curious to know why your forearm is included in the DEXA scan?
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Sometimes I wonder if the drugs help or whether it's good luck or genes. So sorry to hear about your broken ribs. Haven't experienced that yet but did fracture my pelvis years ago. Hate having someone ask what's your pain from 1 to 10 so now I use the pelvis as my upper end.
My endocrinologist keeps telling me I have osteoporosis; my response is "maybe".
Her conclusion is based on the -2.5 value at L2. L2 just happens to be where my spine takes a significant lateral bend because of my scoliosis. Standing up straight as my mother was always reminding me, has my left shoulder looking 1.5 inch lower than the right. Doc says the computer adjusts for the turn at L2 but alas I don't believe that happens. At an active 79 (still skiing) I've become more cynical and sometimes blow off what I'm told by the "experts" of which there are non in the Houston area. So good luck. I've learned so much from the knowledgeable women in this group that I think my PCP would like to get rid of me since I question everything. Friday she suggested that since I was pretty up to date on the subject, I should just pick city with good bone options and make my appointment there. Maybe so.
Boy. I sure wish I got diagnosed with mine earlier cuz I would've been on a bone building drug 5 yrs ago cuz now I have 8 compression fractures and im 68 now but been active with biking, walking ,fitness center . Had no clue--So my opinion is get on something to build bone before something like a fracture happens bc it has ruined my life in a snap of a finger after lifting something heavy. Just a thought.
While many seek meds , they are not the only solution…take great care before taking them…make sure there won’t be negative drug interactions. Tell your doctors immediately of bad side effects—they should listen and guide you carefully.
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Like -
Helpful -
Hug
2 ReactionsI received my first infusion of Recast last August, and when I had my bone scan a couple of months ago, there was no improvement, but apparently my osteoporosis has not improved, but it has not gotten better. I was sure the PA who I had been seeing said there could be improvement, but ow she says no!? I'm about to do my second dose and I wonder if anyone has experienced any improvement or if I could consider switching to another treatment? When I initially looked into treatment she had really been pushing Forteo, but my insurance didn't cover it. Not sure if that would improve my condition either?
Thanks!
Hello, I had 3 infusions of Reclast in 2016, 2017 & 2018 at the Mayo Clinic. I needed to stop the progression of the osteoporosis and since I had side affects from oral medications I decided to try Reclast. I was told it would not improve my bone density but hopefully stop the progression. My doctor was just as amazed as I was that it reversed my osteoporosis to osteopenia and that was confirmed again with my last bone density scan in March 2025. Each person is different and for whatever the reason I had amazing results with this treatment.
-
Like -
Helpful -
Hug
3 ReactionsWow! I guess miracles do happen!
So, you won’t have any additional treatments? Was there anything else that you did while you were having the reclast infusions?
If the osteopenia reverts back to osteoporosis I will most likely have to have the Reclast treatments again. I didn't do anything else as far as medications but I make sure I get enough calcium. I also have osteoarthritis so I did have two knee replacement surgeries at the Mayo Clinic. Bone health is very important for me and I also take vitamin D supplements since I'm chronically low with my levels.
Hi the name of the
Blood test you were asking about (as abbreviated in my list of results) is Bone Spec Alk Phos.
Just located my scores from 2024:
Lumbar:
T-Score: 0.7
Z-Score: 1.2
Normal BMD
Femoral Neck
T-Score: -2.3
Z-Score: -0.7
Osteopenia
Forearm
T-Score: -2.9
Z-Score: -1.1
Osteoporosis
Thank you so very much for this info. Very kind of you to remember.
McCormick's Great Bones discusses this test and I will make time to read and understand it later today.
Your T-scores look quite good.
Hope you do not mind my asking but curious to know why your forearm is included in the DEXA scan?