Treating Long Covid as Inflamation Based

Posted by gregorb @gregorb, May 29 11:15am

Thought that Long Covid is inflammation driven in attacking our bodies? Please correct me if I'm wrong. If so, why aren't the treatments based more on that, if clinically effective. Sure, you can talk about the issue of possible addiction to pain and inflammation killing medications and doctors reluctantance to treat that way,
even with monitoring. But guessing quality of life may be more important to many of us at this point. Especially for seniors.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for lkirnbauer @lkirnbauer

Look it up, but I’ll get you started. They are foods called Nightshades and they include: tomatoes, chocolate, shellfish, aged cheeses, citrus, fermented foods, pineapple, strawberries, sauerkraut, eggplant, canned meat, eggs, fish, processed meats, spinage, vinegar, dried fruit, cashew nuts, cherries, alcohol, pickled and canned foods, cured meat, Avacado and I’ll stop there! I do eat some of these foods on occasion, especially the Avacado as I need good fats in my body. It’s been a real eye opener having this and it’s awful! I also lost my taste and smell with Covid in December of 2022, so for me, it’s been a living hell! Wishing you well!

Jump to this post

Unsure whether you are merely writing ambiguously, so perhaps you meant that list of foods to be those that are "histamine-producing" (certainly that would vary amongst individuals, in any case), as opposed to all being nightshades.
But not all those foods are nightshades, which is a specific botanical category!
As a sometime chocolatier, I know that the cacao tree certainly doesn't fall within that classification
You might want to re-write that to elucidate things (alcohol, canned foods, processed meat?!)
Sorry for a relatively late response to this.

REPLY
Profile picture for diverdown1 @diverdown1

SH*T!! I will look this up. Some of those foods are mainstays, but if it is causing the PEM/Fatigue, I will have to change my diet. I am tired of waking up feeling like I survived some catastrophic event. Thanks everyone. Hang in there.

Jump to this post

Not everyone is allergic to these Nightshades, it’s just a group of foods I listed from my doctor. I do eat some on occasion, but when I do, it’s not always pretty! I do stay away from eating Gluten, Dairy and Soy, as I also have. Hashimoto’s and those foods are inflammatory to me.

REPLY
Profile picture for bradfoxaz @bradfoxaz

Hello all ... I can give you some good news. I have first hand knowledge of Dr. Patterson and his work. A clinical trial just got announced ... which will formally run his Protocol through a double-blind RCT! It's just got recorded onto ClinicalTrials.gov (go there and do a search using this string ... NCT06974084) and they are not yet recruiting subjects/patients. I've also had a friend say you can now go here to get testing (https://defeatlongcovid.com/). Unfortunately, insurance is slow in covering the test (the only test for Long COVID!) but it would determine if you could access Dr. Patterson's treatment protocol. Hoping you can access ... but provide any feedback. If I find out when the Clinical Trial actually starts signing up, I'll post.

Jump to this post

I'm a little confused by this.
I thought his company had announced clinical trials, and was seeking subjects, back in February/March!
My understanding is that his company, HealthBioAI, uses a blood thinner drug along with a well-known anti-AIDS retroviral (he made his name combating AIDS), here for off-label purposes.
He certainly heavily promotes himself on Youtube.

REPLY
Profile picture for bettypagegean76 @bettypagegean76

I started Long Covid symptoms back in Summer of 2020. I had a very unusual Covid 19 virus situation where my partner he had 100 degrees severe for about a day but flu like symptoms otherwise. And the. 5 days of no taste no smell. I however had 4 straight days of severe vertigo no fever severe fatigue and no taste no smell for 5 days after the I lost all my eyebrows and it took months for them to grow back this was about 4 months after, they I started having a very unusual fatigue I had never had it would make me feel breathless, then I had Full body crashes out of nowhere where where my brain that it needs to shut down my limbs for hours at a time I ended up with Covid toe. I ended up getting one of the variants of Covid in Dec 2021 6 months later my hair started to get thin but not following out at any raid way. I started getting severe shortness of breath and several inflammation on my lungs the fatigue kept getting worse, now here I am in 2025 and I got fired while on a leave of absence even though my Dr was sending me back to work starting at half time and to increase it as I could I worked for T-Mobile for 8 years prior to that I worked at hospitals and Drs office the went into mental health until I got Burn out 10 years later took a 2 yr stop period and went back to work at T-Mobile back in 2015.
So now I keep fighting a chronic inflammatory situations in my lungs and sinuses. I am the 1st born of a Marine who was in 100% drop zone in Vietnam of agent orange as well so I already had strange things . I was born with 6 fingers on each hand with no bone inside 6th digit so they removed them. And my hip ball was smaller than the socket, I had severe stomach issues most of my life and to this day. But now I have started to swell up because the Drs. Here in Maine refuse to hear Long Covid wording at all. I am searching for any Dr anywhere that will help treat what this is which is an over active immune system, I believe due to the way The Covid 19 virus was able to be hidden inside the body the way it was, so now there is an over active situation that no Dr here will help with. I have severe depression and fatigue is crazy along with I got hit by a semi truck full of illegal people in August 2024 losing and totaling out my car. They at least stopped to see if I was still alive but the driver opened the trailer doors in the back and I saw 15 people with what looked like .ore maybe in the back. 1 person spoke broken English. So now I am having a horrible time trying to get Ssdi, I am 48 yrs old so they try to blame it on pierMenopause which it isn't but treat it lien it's nothing. My insurance company for my car well let's say Is rather have spoken to a toddler they'd have been smarter. And now here I am limited funds can't get my partner to work hardly as he is a contractor who finally got up enough funds and tools etc to go out on his own 2 years prior to the car accident in 2024. My father passed in 2016 so I have 0 family around to even bounce things off but help no. Maine is suddenly gone backwards since Mills who seems like she is supposed to be a Governor hadn't done anything other than give people money and set them up who are trying to migrate which they id I could help anyone I would but not like this. So if anyone knows of any help any Drs any hotlines please let me know

Jump to this post

I am so sorry you are living with this. I live in Florida and for the first two years of long covid, no doc (and I've seen several specialists who all found nothing) would even discuss the possibility of long covid. I have found the key to my living a semi normal life is pacing. When I first started trying this, I could peel one vegetable, have to lay down then peel another. Now I'm doing some better. Do one thing, rest, if you are super tired, keep resting. I am now able to even exercise for about 20 minutes a few times a week. I am also reading a great book that my gastroenterologist gave me, A Silent Fire, the story of inflammation. It is a bit technical but VERY informative and I recommend giving a shot to anyone on this page. Don't give up, you may not find a cure but you can find a way to live a bit better. I wish you well

REPLY
Profile picture for sandtoes @sandtoes

I am so sorry you are living with this. I live in Florida and for the first two years of long covid, no doc (and I've seen several specialists who all found nothing) would even discuss the possibility of long covid. I have found the key to my living a semi normal life is pacing. When I first started trying this, I could peel one vegetable, have to lay down then peel another. Now I'm doing some better. Do one thing, rest, if you are super tired, keep resting. I am now able to even exercise for about 20 minutes a few times a week. I am also reading a great book that my gastroenterologist gave me, A Silent Fire, the story of inflammation. It is a bit technical but VERY informative and I recommend giving a shot to anyone on this page. Don't give up, you may not find a cure but you can find a way to live a bit better. I wish you well

Jump to this post

Best wishes and good luck.

REPLY
Profile picture for uget1shot @uget1shot

the interesting thing is, this inflammation seems to evade detection; in all the imaging studies i had done prior to surgery, none showed even a hint of the webbing that was there. CTs, doppler ultrasounds, Xrays and even an MRI done weeks before - none showed any hint of it.

Jump to this post

It's at the cellular level.They've never found anything with me either.I did however at one point manage to get Pnuemonia,Bronchitus,Shingles, AND another hit from covid.One doctor gave me a dosage of prednizone.Felt really good to 'be normal' again,even if it was only like that for a week or so.That was last year.
Following Dr Paul Anderson o0n Youtube now for at least three years.He knows what's happening with the reasons why it's happening.He's awesome.I feel so much better now...only 'some' damage needing to be corrected.And I'm positive his regimes are legit.

REPLY
Profile picture for h2998sc @h2998sc

It's at the cellular level.They've never found anything with me either.I did however at one point manage to get Pnuemonia,Bronchitus,Shingles, AND another hit from covid.One doctor gave me a dosage of prednizone.Felt really good to 'be normal' again,even if it was only like that for a week or so.That was last year.
Following Dr Paul Anderson o0n Youtube now for at least three years.He knows what's happening with the reasons why it's happening.He's awesome.I feel so much better now...only 'some' damage needing to be corrected.And I'm positive his regimes are legit.

Jump to this post

Thanks for sharing - I'll look into Dr. Anderson - not one I'm familiar with.

REPLY
Profile picture for uget1shot @uget1shot

Thanks for sharing - I'll look into Dr. Anderson - not one I'm familiar with.

Jump to this post

You're welcome..God Bless you in your journey out.

REPLY
Profile picture for sandtoes @sandtoes

I am so sorry you are living with this. I live in Florida and for the first two years of long covid, no doc (and I've seen several specialists who all found nothing) would even discuss the possibility of long covid. I have found the key to my living a semi normal life is pacing. When I first started trying this, I could peel one vegetable, have to lay down then peel another. Now I'm doing some better. Do one thing, rest, if you are super tired, keep resting. I am now able to even exercise for about 20 minutes a few times a week. I am also reading a great book that my gastroenterologist gave me, A Silent Fire, the story of inflammation. It is a bit technical but VERY informative and I recommend giving a shot to anyone on this page. Don't give up, you may not find a cure but you can find a way to live a bit better. I wish you well

Jump to this post

I also had seen several specialists and hinted at LC but none took me serious until I went to a rheumatologist/internist recently. My autoimmune labs were elevated so asked my regular doctor to refer me to one and she did. I am much more hopeful even though I haven't started treatment yet.

REPLY

Hi @bresue. Ive had more challenging couple of wks and havnt read all posts so hope not repeating. One huge hurdle is our lab values changing significantly, appearing normal, not performed level needed….May suggest have your lab values in hand that showed the first doctor as that seems to shorten the @get them to see” process🤞 Quickest healing to you🌈

REPLY
Please sign in or register to post a reply.