2nd visit - this time with the specialist in BMT. He was a wonderful resource of information. He reviewed my health information and was thoughtful about next steps. Because of my current health he is recommending monitoring until I have another mutation and or am experiencing more symptoms. He thinks 3 years most likely. He recommends continuing my current health regime and staying on my Mediterranean type diet. This means 68ish for the BMT. Mayo is getting my blood typing to see if there is a pool of potential donors. I will do a phone visit in 2 months for the next check up.
2nd visit - this time with the specialist in BMT. He was a wonderful resource of information. He reviewed my health information and was thoughtful about next steps. Because of my current health he is recommending monitoring until I have another mutation and or am experiencing more symptoms. He thinks 3 years most likely. He recommends continuing my current health regime and staying on my Mediterranean type diet. This means 68ish for the BMT. Mayo is getting my blood typing to see if there is a pool of potential donors. I will do a phone visit in 2 months for the next check up.
Thanks for your update. Good to hear you had a positive appointment with BMT specialist and that he was a wonderful resource of information. It is so important to have a very good match for a bone marrow transplant for best success I gave read so good to start early and not be rushed. It sounds like you are not on meds at this time and just doing healthy Mediterranean Diet. I bet you are less frustrated now which is so positive.
Connect
Connect
Like
Helpful
Hug
Hi @davi0397,
I hope your EKG and doctor appointment went well.
Happy Weekend!
-
Like -
Helpful -
Hug
1 Reaction2nd visit - this time with the specialist in BMT. He was a wonderful resource of information. He reviewed my health information and was thoughtful about next steps. Because of my current health he is recommending monitoring until I have another mutation and or am experiencing more symptoms. He thinks 3 years most likely. He recommends continuing my current health regime and staying on my Mediterranean type diet. This means 68ish for the BMT. Mayo is getting my blood typing to see if there is a pool of potential donors. I will do a phone visit in 2 months for the next check up.
-
Like -
Helpful -
Hug
2 ReactionsHi @davi0937 ,
Thanks for your update. Good to hear you had a positive appointment with BMT specialist and that he was a wonderful resource of information. It is so important to have a very good match for a bone marrow transplant for best success I gave read so good to start early and not be rushed. It sounds like you are not on meds at this time and just doing healthy Mediterranean Diet. I bet you are less frustrated now which is so positive.
-
Like -
Helpful -
Hug
2 Reactions