Hepatic encephalopathy
Yesterday l saw my neurologist at the Mayo Clinic she told me some good news that l don't have frontal dementia and l was suppose to see another neurologist and psychiatrist/ psychologist and l was able to cancel both appointments. But a vascular disease doctor l saw before her was talking about one of my stunts being wide but he didn't know how wide so l had to have a ct of my stomach and pelvis to see how wide and if they would have to do anything. So he put on my notes that he will have to talk to a gastenerologist for a second opinion. Well l thought that was great. Then l started itching this morning and l had to take a shower and put on my cream from the dermatologist. Then l looked up hepatic encephalopathy which l do have and it seemed like the neurologist sounded like she wasn't saying anything that seemed right to me. When l asked my husband he said she sounds like she's being careful what she's saying because l have been misdiagnosed a lot. When l was reading the stages it seems like l have symptoms of all 4 but she said that maybe sometimes your ammonia levels fluctuate. Which l can see that. Then my general practice doctor referred me to a liver clinic instead of a gastenerologist. And l was reading that when you have stunts you are suppose to be seen every month then 6 months and then if everything is alright maybe you can see the doctor every year just to make sure you have no problems with the stunts. After my shunt was put in l saw my gastenerologist once and then he said he was retiring and asked me which of his partners l wanted to see. I tried to make an appointment because he didn't say it was a rush he said l could see him next year. Then when l tried to make an appointment they wouldn't schedule me an appointment because l owned them 62.00. And l really wasn't in to much of a rush since all my other hospital bills. So now l tried to make an appointment again since the Mayo Clinic was asking me about seeing a doctor at home. They called me and scheduled appointment then l got a call from the hospital saying my general practice doctor is referring me to the liver clinic. So when l asked the question why l am not going to the gastroenterologist l can't get an answer that makes sense. But my ammonia levels are ok so l just don't understand doctors now a days. If you asked a question about your health you got an answer but l guess they know in my case l could sue them. Because l was told all these diagnoses l had and all the meds they gave me that now l am allergic to all these pain meds. I guess l will go natural remedies we didn't have all these problems and l am finding out instead of them helping they are harming you.
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Yes I'm going to call first thing, this came so unexpected my Drs told me I had years before I even needed to be on the list. Needless to say I'm not on list yet. On no!
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