Treatment for chronic Epstein-Barr virus (EBV)

I’ve never thought of beef as acidic. I was told for him to not eat pork or chicken. Do do you know why? I want him to have a normal life and he’s flexible with diet if he can feel better and have enough energy to go back to school. I’m concerned he’s getting depression. The other day he said “I don’t feel good. Not like I’m sick. Just like I’m sad and angry at the same time.” I think this is a lot for a 7 year old to digest.

@momnxtdr I think a child should be free to eat all food groups and types unless they of course show an allergic reaction. All meats, all veggies, all fruits, whole grains and even pizza (unless actually allergic to wheat). Even dare I say a dessert once in awhile. At my age (I am 61!!!) I am trying to eliminate some foods to help my chronic EBV but it is not proven that a restrictive diet helps. Lots of vitamins for sure and lots of fruits (don't worry about the sugar from fruits) and veggies.

Is this a biological drug like a low dose of chemo?

@sherryntn - I think of it more as an allergy shot - so its not like chemo.....My doctor has me on the injections once every 7 weeks - and I can come in earlier if I am really feeling bad with low energy at five weeks. As I have CLL and EBV I have had a oncologist suggest that I get a cortisone shot to give my body and immune system a break. Something he saw while in residency in Portland OR. I have yet to find Alopathic doctor/family physician who will give me one. - I am finding I have better luck getting relief with a Naturalpathic physician.

The other thing we did was bring in an expert to find and treat black mold in our house - which was found is a few places behind the wall board - and we removed all wall to wall carpeting. Both helped. I find I feel the best when I am next to the water with few allergy stressors on my system.

For LDI - Here is a better description that I found @ https://www.marinnaturalmedicine.com/low-dose-therapies/

"Low-dose allergy (LDA) therapy and low-dose immunotherapy (LDI) are safe and effective treatment options for a variety of symptoms caused by food and environmental allergies. In addition, infections can trigger immune dysfunction and autoimmune diseases. Allergies and autoimmune conditions have been on the rise for the past 30 years.
How does LDA and LDI Work

LDA and LDI use extremely low doses of antigens in conjunction with the enzyme beta glucuronidase to down regulate an inappropriate immune response. This is also known as increasing immune “tolerance.” LDA and LDI are better tolerated than conventional allergy therapy, as well as being more convenient and effective. Conventional treatment with escalating doses of allergens often require twice weekly injections for 4 to 6 months, then continued at extended ongoing intervals. Low-dose therapy injections are only given every 7 weeks, and frequency is reduced over time as a patient’s symptoms improve. Contrary to conventional allergy injections, LDA and LDI doses are much lower, and there has never been a reported case of anaphylaxis.
Conditions Treated

LDA and LDI treat a wide range of immune dysfunction including food and inhalant allergies, chemical sensitivity, autoimmune conditions and symptoms triggered by infections such as Lyme disease.

LDA and LDI is effective at treating immune reactions including:

Infection – Lyme disease, bartonella, babesia, erlichia, mycoplasma, Epstein-Barr virus (EBV), cytomegalovirus (CMV), HHV-6, herpes, shingles
Digestive – food, allergies IBS, diarrhea, Crohn’s disease, ulcerative colitis, Celiac disease
Environmental – grasses, pollen, mold, pet dander, dust; multiple chemical sensitivity
Inhalant – asthma, hay fever (seasonal allergies)
Skin – eczema, acne, psoriasis, hives, vitiligo, alopecia
Autoimmune – inflammatory and rheumatoid arthritis, autoimmune thyroiditis, ankylosing spondylitis
Neurological – headaches or migraines related to food
Conditions such as chronic fatigue syndrome, fibromyalgia, symptoms from candida/yeast and inflammatory arthritis

Dr. Maderis trained in LDA and LDI therapy, and uses it to treat a variety of conditions. Call Marin Natural Medicine Clinic if you would like to schedule an appointment for LDA and/or LDI."

Good luck.

Hi everyone, just a quick update - My blood test results have shown positive for EBV (as expected) so I guess that is the cause of all my ailments after 4 months of utter hell! Unfortunately I do not have a copy of the titre values - am I able to request these?

@smcivor94 Hi there. I don't see why you couldn't request a copy of those results. I request hard copies of all of my sputem tests for my lungs and I get them. I cannot imagine any reason to be denied that request. Best of luck to you!

Thank you for replying. Spoken with my doctor this morning and was told that I need to accept it is what it is and move forward. So basically refused a copy. I feel at a total loss. These last three months I’ve never felt so unwell and the healthcare professionals refuse to take me seriously (I have GAD) but I know something is a miss. Anyone else had similar experiences and advice as to what I should do next? I cannot continue feeling the way I do and the constant pain is debilitating. I’m only 24 years old and feel as though my life has completely stopped.

I'm sorry you are feeling this way and being mistreated in my opinion by the medical professionals. When I was your age, I had to change my primary physician 6 times to get someone to take me serious. I was told that I was a healthy young person with my life ahead of me and to put my energy into my career instead of being a hypochondriac. The 6th doctor said "if I'm the 6th, you must truly believe something is off and your coloring isn't healthy. I'm going to order an MRI since all your bloodwork is normal." Well, I had NINE tumors in my thyroid. They sent me to endocrinologist and they were malignant. The following day I had my thyroid removed and we started radiation treatment a month later. It wasn't in my head and I wasn't a hypochondriac. I'm not saying this is your issue. I'm simply sharing that you need to be your own advocate and keep getting new doctors until someone is willing to dig deeper. My son is 7. He's been sleeping 16-20 hours for 2 months. Same thing... "it may be in his head". Turns out he has EBV and TB.

Oh my goodness, I am so sorry @smcivor94 . That's ridiculous. You should have a right to your medical records. I'm not familiar with how things work in the UK though (that's where you are, right?). May you be able to find a naturopath, functional, or another doctor who can help. If not, there are some that work with clients over the phone/internet. Dr. Rodger Murphree is here in the States and works with folks all over the world helping them with CFS/fibromyalgia. I can't say if you fall into that category or not but you might since your EBV was positive. Please don't give up. You will have quite a story to tell and be able to encourage others when you are on the other side of this.

@momnxtdr Your son is lucky to have you fighting for him! Be persistent. Keep searching! 🙂