Lichen Sclerosus: Any other women dealing with this disease?

The only thing that works for me is Lisepten. I use coconut or jojoba. It's instant relief for me.

So glad to find this group. I am 64 and was diagnosed 6 weeks ago. Clobetasol has not helped. I have not only white tissue between my vagina and anus, but also ulcers around my anus. So painful.
Biopsy of white area and two ulsers confirmed LS and no bad cells, thankfully. But the sores are multiplying and I haven’t seen much on this from prevention to healing.
My GYN said to go back to steroid after biopsies heal hoping using it longer will work. I am not convinced. I am hoping to see my dermatologist soon.
I will take any advice on preventing and treating ulcers.
Thank you

Hello!

I see a GYN once a year I have also been to a dermatologist twice. Biopsies as well.
The only thing that has helped for me
in between using Clobetasol is ESTROGEN cream Recommended by both my GYN and dermatologist. Of course you need a prescription. Maybe discuss with your GYN.
For me, stress causes flare ups. I feel the estrogen works better.
Take care!