1. < Blood Cancers & Disorders

Developed Rash on Hydroxyurea (HU)

Posted by pendlebear @pendlebear, May 17 2:14pm

I am 72 years old and have ET with JAK2 mutation. I am on HU 500 mg twice a day. I have recently developed a rash on my torso and shoulders. Had steroid injection yesterday and taking Benadryl daily. The itching has stopped but some new rashes are appearing. I guess I need to give it more time. My platelets are lowering and hematologist says if that continues she will switch me to one pill a day. Has anyone else gotten a rash?

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pamdg | @pamdg | 1 day ago

Yes I got a itchy rash on my ankles. Also ran a high fever. Doctor had me switch to Jakafi.

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nohrt4me | @nohrt4me | 1 day ago
In reply to @eloise999 "What is Medicare Advance program? I never heard of it." + (show)
@eloise999

What is Medicare Advance program? I never heard of it.

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Sorry, my proofreading mistake: S/b Medicare Advantage. Coverage on those is all over the map. They offer at least what straight Medicare does, but they usually restrict you to a certain medical system and require referrals. They're often cutting vision, dental, and drug benefits each year to keep their profits up.

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mw2023 | @mw2023 | 1 day ago
In reply to @nohrt4me "Yes, financial cost of meds and health care generally is a concern for me, too. Glad..." + (show)
@nohrt4me

Yes, financial cost of meds and health care generally is a concern for me, too. Glad you found GoodRx. I get meds thru my hospital system's Medicare Advance program that are about 30 percent cheaper than chain pharmacies. It pays to shop around.

Re gastric/motility issues: My husband was pushing probiotics after consulting Dr Google, so I slapped that down. But then the hemo suggested it, and they did make a diff for me. I think yogurt would be just as good, but I have some lactose intolerance.

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Chobani Greek yogurt zero sugar is lactose free. Make sure you see the lactose free label on the front. It is delicious and has great flavors.

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