Bladder ureteral obstruction/stricture

I wrote last week about anyone having issues with toxic oxates, but nobody responded. My 59 year old daughter who has always been active (triatholons, etc.) and ate a very healthy diet including spinach, kale, nuts, even celery drinks has been in horrendous accelerating pain for the last 5 years. Her bladder doesn't work properly and she has been seen by our local Yale doctors, as well as having a workup at Massachusetts General Hospital. Urologists, nutritionists, functional neurologists, everyone has weighed in and no answers are available. Her husband recently heard a podcast about excessive oxates in the diet causing toxicity. The hyperoxates are all the things that she as a nurse has been told were the right way to go. Since these oxates stay in the body causing kidney stones, liver and bladder damage, they don't show up in even a urine test. She's been doing all these healthy practices since college, so 38 years. A Cornell trained nutritionist, Sally Norton, has written a book about these issues and should arrive tomorrow. I'm wondering if anyone has experience with this.

Radiation after cancer reaccurence. Stricture is right before bladder neck.
I had cystoscopy dilation done. Stricture closed with in 4 weeks.
Had to go too emergency room to have catheter installed. Had cath in fir 14 days. Catheter bag full of blood. Cath was blocked with a clot.
I have an appointnent at the Lahey Clinic in Burlington Mass to focus on my options.

I am in the Detroit Mi area.
The major hospitals don’t offer Optilume. I am going to be seen at a Urethral Clinic which does offer it. I have Medicare B. I haven’t heard of Medicare covers it. My current urologist says Optilume isn’t recommended for patients who hav had previous radiation treatment.
Any comments or experience. Thanks for your reply

@dstephens20, you might also be interested in this related discussion:
- Optilume Balloon Treatment for Prostatic Strictures
https://connect.mayoclinic.org/discussion/optilume-balloon-treatment-for-prostatic-strictures/

Sorry I didn't see this sooner. I too have a bladder neck stricture caused by radiation for prostate cancer. Surgery was proposed but because of the location my urologist at MSKCC said I would likely end up incontinent. Instead I opted for a supra pubic catheter. I have had it for eight years with no problems. Until last year I used a female length catheter (8.5 inch) and just capped it. Bard discontinued the female length catheter so now I use the standard 17 inch catheter and coil it.
The SP catheter is a viable alternative to surgery.

Quisiera conocer la experiencia de alguno que hubiese utilizado Optilume, aplicado a una estenosis de uretra en la zona de operación de prostatectomía radical con radioterpia. Gracias

Had to have optilume procedure done 1 month after RARP. That was about 3 months ago. So far so good.

Te habían también radiado?

Gracias por tu información y me alegro. Te habían radiado también?

I had a TURP procedure about 2 1/2 years ago at UPMC for urinary retention. It worked for a couple months and then I started having issues again. My Urologist ordered a Urodynamic study thinking I had a weak bladder. I couldn’t complete the entire exam when they inserted a urinary catheter and asked me to void around the inserted catheter. At the time, I was standing in a bright exam room with people watching. That urologist recommended going for physical therapy that involved internal prostate massage. I signed up with a therapist trained specifically for that but she never performed the internal prostate massage. I was only instructed to do stretching exercises. The urologist who recommended the PT said it was a waste of time if they weren’t going to do the internal massage.

I had an appointment with the urology PA about 6 months ago and I informed her that I was occasionally self-catching at night. She again recommended PT. I wasn’t going down that route again. Doesn’t seem like the two Flomax I’m prescribed really does anything anymore.

I decided to get a second opinion from a local Urologist. I went about three weeks ago and he put me on Gemtesa. After a short while, I started getting intense burning at night and my self-catching increased significantly. After about 1 week I discontinued on my own and informed the office. They thought I had a UTI but culture was negative. On got some relief after the first two days not taking the Gemetsa. Now I’m getting the burning back at night after I have been asleep for a while. I see the local Urologist this coming Monday.

Up until a month or so ago, My urinary retention only happened occasionally at night. I was self-catching 1 or 2 days a week. Now after the Gemetsa, I have to self-cath at night daily sometimes 4 -10 times a night. It is even now occurring occasionally during the daylight hours which it never did before.

This is becoming increasingly frustrating and it seems like the urologists don’t know what to do.