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Anyone taking Tyenne (tocilizumab-aazg) for rheumatoid arthritis?
I suffer from severe rheumatoid arthritis since 2017. My Dr wants me to try a biological medication called Tyenne injection is. There someone that has experienced this medication? Little nervous to try
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@sparkswd Welcome to Mayo Clinic Connect! I’m certain that someone with RA will respond to you. It may take a few days but they’ll be here!
@sparkswd, I moved your question about Tyenne (tocilizumab-aazg) for rheumatoid arthritis (RA) into its own discussion. I believe @mejob has experience with this medication.
Sparkswd, have you started the new treatment yet?
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1 ReactionI've been taking Actemra, which is another form of tocilizumab, for almost a year. I take an injection every week for giant cell arteritis. I haven't had any side effects, and it has allowed me to taper prednisone from 60 mg per day down to 1. I was a little queasy at first about injecting myself, but I got used to it in a few weeks. It's pretty much foolproof with the auto-injector pens. I'm feeling better now than I have in several years. I expect to keep taking the injections for at least a couple more years.
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1 ReactionI had my third weekly shot yesterday for ra
Rinvoq quit working after five years
Dr also started me on acthar with tyenne
Im just waiting and hoping they will start working. I am unable to walk right now. Good luck
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1 Reaction@davidtile1 Welcome to Mayo Clinic Connect! I’m glad you’re here. You should be up and around soon!
What is the best thing you can get done while you’re sitting around?
@davidtile1 hi dear does Tyenne help you?
@jeff97 may i ask what are your symptoms?
My husband has scleroderma with swollen legs and contracted fingers. He's taking Tyenne too. What are your symptoms?
@peaceprevail7
@peaceprevail7
I had PMR for several months before developing GCA. The PMR was primarily stiffness in the shoulders, neck, and hips. For GCA, I had low grade fever, night sweats, pain the cheekbones, tenderness in my scalp around my ears and on top of my head, fatigue in my jaw muscles when I was chewing, and eventually an episode of temporary partial vision loss in one eye. I went to the emergency room for the loss of vision, and I was diagnosed with GCA and PMR. I started treatment then and it saved my vision. All of the other symptoms of PMR and GCA also cleared up once I started treatment.