There is no hope: Life feels impossible to me

Yeah. Conditions that have no set treatment or protocol to improve suck. I have chronic ITP (low platelets) - there are (limited) treatments, but it's a crap shoot whether they will work or keep on working; and there is nothing you can do to make it better or worse - it just does what it's going to do. Maybe you should look into whatever treatments they give for long term COVID symptoms, because it seems you share a lot of the same symptoms. You might not be able to actually cure the underlying condition, but it may help alleviate the symptoms. Good luck.

Just wanted to say I totally understand about “hidden diseases”. It is indeed frustrating!

And correct me if I’m wrong… vitamin D3 works best when taken with magnesium, vitamin A and vitamin K.

I learned all of these tricks during Covid. A lot of vitamins need zinc to help them work effectively. That was something I never knew.

I am all for the naturopathic route. If naturopathic doesn’t work, then I use pharmaceutical as a last resort.

What I see here is how people living with disabling chronic illness have learned to cope by changing their perceptions, their health regimen. @ariza9110 I would like to share that I became ill when I was 31 and now I'm 67. I can tell you that I had extreme chemical sensitivities when I was in my 30's. In addition to 4 autoimmune illnesses, I had cancer. I lived in an old apartment with terrible black mold while going through radiation treatments.
Here's what I've experienced; brain fog was initially very difficult, but it didn't last. I had gluten sensitivities and was gluten free for 10 years, then that cleared up also. I have 3 decades of dealing with chronic problems that I learned (somehow!) to cope with, then things change.

I understand feeling hopeless. But following suggestions by folks here sounds like a good place to start. My feeling is there have been symptoms coming and going , the most important thing for me has been creativity. People are creative with their approach to their illness, they are learning natural medicine to help others (@rainerhans). I became a certified chair yoga therapist because I couldn't find a good yoga therapist when I moved here. Now I offer free classes for seniors and the disabled.

When I turned 60 and realized half my life I've been disabled, I was very surprised to learn that if I had to do it all over again, I wouldn't change a thing. I've become a published poet in this time. I love the natural world. I love baseball...

Find even one thing a day that brings you joy. That's how I got through my depression in those first 10 years. Gradually, I looked forward to that one thing and built on it. Even with illness we can have passions for love, joy and creativity.

This is hard won advice.

Soo very inspiring!! Thank you soo much for sharing..God bless you!!

I developed severe asthma after working in an old building which turned out to have black mold. My Dr. wrote several letters to employers & finally told me I had to take FMLA leave because it was so bad & I was ruining my lungs. I ended up retiring. (Luckily, I had reached retirement age & had the years as well as over a year of accrued sick/vacay days earned prior to being moved to this building. I had allergy testing & was allergic to 9 molds & a bunch of other stuff like cockroaches, environmental stuff. I took allergy shots which were really rough at the time, but significantly helped. I also moved from that area. I am still very sensitive to molds. I don’t know about brain fog, but when I found out about the asthma, my main complaint was headaches & coughing. The Dr. said my blood gasses were terrible - the CO2 was too high & O2 was too low. I was exhausted all of the time. I do not know if this helps you, but perhaps allergy testing & shots might help.

I also would periodically break out in hives which was miserable. I have only had hives once since I moved & the asthma is under control without all of the medications I was taking previously.

I am so sorry you are going through this - I do know that the more I was exposed to the mold areas, the worse I got. Lots of sinus infection's, and you may want your Dr. to test you for that -don’t forget that some are caused by fungus (mold) and need to be treated differently.
Healing energy your way! 🙏🏻

Hi Rainerhans,
What a terrible time your poor husband had and for so long! But what a miracle those leeches turned out to be! I didn't realize that using leeches really worked! I've read many novels written in the 1800's and 1700's where they did use leeches when someone was very ill. But I never believed that they really worked! I thought it was just a remedy and about all they had to work with in those days. It's good to know how well things turned out for your husband with the leeches!

How nice you moved to Alaska! I live in Washington State and have only been to Alaska once; Kodiak. It was just beautiful! That was some years ago but from what I've read Alaska has remained pretty much the same.

Thanks for telling us about the leeches!
PML

VERY TRUE MINDSET IS THE MOST IMPORTANT FACTOR IN YOUR TREATMENT.

DIAGNOSED IN 2021 WITH CLL/SML DID TREATMENT AND IN 6/2022 DECLARED IN REMISSION PHASE
HAD A PET LAST SATURDAY AND IT SEEMS IT'S COME BACK, I'LL FIND OUT TOMORROW WHEN I SPEAK TO DOCTOR.

SHIT HAPPENS

@kobe2026
That's a reality check! Shit happens... Hope your remission continues and let us know how you're doing after the PET results are back.

Just got off phone with my doctor, CLL/SLL is returning again, remission started 6/22. Latest Pet scan shows returning lymph activity. At present it's not super serious but starting with Zanubruntinib after genetic blood test,
thank God not infusions this time around.

ONWARD