Pituitary tumor symptoms: joint, muscle and body aches

Welcome to Connect, @khauert. I moved both your messages to this discussion and added it to the Brain Tumor group as well the NETs group. I did this so that members could get the full picture and to bring fellow members together, like @ladydove417 @dmedina71 @astaingegerdm @sandysdoves @gemttaz and others who may have experience to share with you about pituitary tumor and joint and muscle pain and body aches.

You can also read about others with pituitary tumors in this discussion
- Looking for others with Pituitary Adenoma https://connect.mayoclinic.org/discussion/i-like-to-now-if-their-is-anyone-who-has-been-diagnosed/

Are you getting treatment at this point to help manage the ache and pain? How do you manage it? Might it be related to medication you're taking?

In November 27 2004 I woke up after midnight with a severe headache
I knew after about an hour that it was not your normal severe headache it hurt so bad I had to go to The E R
Within a couple hours of being in E R I started seeing double vision instead of 1 TV I saw 2 then my eye lid completely shut n I lost control of it
They ran several tests n found the Pituitary tumor in my forehead that put pressure on my eye and the found Cancer in my Colon luckily my tumor in my head had nothing to do do wit Pituitary Tumor doctors monitored it for a year and wasn't groing anymore so they left it alone 20 yrs later I'm starting to have that same headache everyday bones are hurting developed Heart Problems just all sorts of problems an I in danger of something possibly developing n going wrong with me body aches n all the symptoms developing
I'm getting worried because I didn't know bones and joints would ache from it and heart problems signed rdele1567 I'm concerned what can I do

In November 27 2004 I woke up after midnight with a severe headache
I knew after about an hour that it was not your normal severe headache it hurt so bad I had to go to The E R
Within a couple hours of being in E R I started seeing double vision instead of 1 TV I saw 2 then my eye lid completely shut n I lost control of it
They ran several tests n found the Pituitary tumor in my forehead that put pressure on my eye and the found Cancer in my Colon luckily my tumor in my head had nothing to do do wit Pituitary Tumor doctors monitored it for a year and wasn't groing anymore so they left it alone 20 yrs later I'm starting to have that same headache everyday bones are hurting developed Heart Problems just all sorts of problems an I in danger of something possibly developing n going wrong with me body aches n all the symptoms developing
I'm getting worried because I didn't know bones and joints would ache from it and heart problems signed rdele1567 I'm concerned what can I do

All your conditions are very similar to what I have. I was recently diagnosed with a pituitary tumor due to peripheral vision issues. I also have the body aches and muscle aches and joint pain every day. I currently have an appointment with an endocrinologist and a neurosurgeon to evaluate the tumor and discuss management. Your input in snd stores are very helpful to me understanding my condition and will update once I get some answers on what the next steps are.

Hi, I was diagnosed with a non functioning pituitary adenoma just over a year ago however there were very few symptoms until recently. I had an MRI in May 2025 that showed the adenoma had grown to 2 cm within the year & now I'm experiencing facial pain, headaches, muscle pain & weakness, fatigue, tremors, joint pain & I pass out all the time! I get very tired and shortly after, I pass out, mostly in my chair but I've passed out a couple of times on the kitchen counter & of course, the toilet. I'm waiting for approval to see a neurologist outside of my health network but I'm going to try to move it along a bit faster - if I can stay awake long enough to do it! I hope you can get some answers to your issues as they are allot like mine. If I get news about it I'll keep you apprised & would appreciate you to do so also. I look forward to some good news soon!

Hi, I was diagnosed with a non functioning pituitary adenoma just over a year ago however there were very few symptoms until recently. I had an MRI in May 2025 that showed the adenoma had grown to 2 cm within the year & now I'm experiencing facial pain, headaches, muscle pain & weakness, fatigue, tremors, joint pain & I pass out all the time! I get very tired and shortly after, I pass out, mostly in my chair but I've passed out a couple of times on the kitchen counter & of course, the toilet. I'm waiting for approval to see a neurologist outside of my health network but I'm going to try to move it along a bit faster - if I can stay awake long enough to do it! I hope you can get some answers to your issues as they are allot like mine. If I get news about it I'll keep you apprised & would appreciate you to do so also. I look forward to some good news soon!