Has your doctor been straightforward about your survival?

Posted by lathomasmd @lathomasmd, Jun 2 10:05am

Hi all. I’m so glad this forum is here. I was diagnosed with papillary serous ovarian cancer, stage IIIc, three-and-a-half years ago. I just finished my third course of chemo. My doctors will not be very frank when I ask “What are my chances of long-term survival?” They say things like, “Every patient is different” “I don’t like to put a number on it” and, believe it or not, “You could be hit by a bus tomorrow!”
I’d very much like to know what other patients’ doctors have told them regarding their chances. Have they been straightforward with you? Or are they vague and uncomfortable discussing odds of survival?
Thank you.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

I just had that discussion with my oncologist today, emboldened to ask by our conversations here. I said, I would like to know best case scenario, worst case scenario, middle case, how long might I live? The uncertainly is really upsetting. We've been together 20 years and would like to get married in September. Will I still be alive then?
She offered congratulations and then said, "Some people with Stage 4 cancer live many, many years. Worse case, a year." A year is longer than I thought I had. A year is a long time - all the seasons. I am going to work hard a beating those odds. I am meeting with an excellent dietician , very knowledgeable. If chemo doesn't work -I currently have "mixed results." - I may try the Push Pause cancer treatment as exspoused by Dr. Thomas Seyfried. I have also been reading "Radical Remission and watching the free videos on You Tube. That is very encouraging. It is about the factors that people have in common who have survived stage 4 cancer and were not helped by traditional western medicine. Diet is a big one. William Li on You Tube also has diet suggestions.
Sugar "ignites cancer." I've managed to change my diet a lot and eliminate most sugar. I don't miss it as much now. However, it is in everything, salad dressing, etc. so not eleminating all of it. Fruit sugar, fructose, I am allowing. Nectarines!!!

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@jchantler

I just had that discussion with my oncologist today, emboldened to ask by our conversations here. I said, I would like to know best case scenario, worst case scenario, middle case, how long might I live? The uncertainly is really upsetting. We've been together 20 years and would like to get married in September. Will I still be alive then?
She offered congratulations and then said, "Some people with Stage 4 cancer live many, many years. Worse case, a year." A year is longer than I thought I had. A year is a long time - all the seasons. I am going to work hard a beating those odds. I am meeting with an excellent dietician , very knowledgeable. If chemo doesn't work -I currently have "mixed results." - I may try the Push Pause cancer treatment as exspoused by Dr. Thomas Seyfried. I have also been reading "Radical Remission and watching the free videos on You Tube. That is very encouraging. It is about the factors that people have in common who have survived stage 4 cancer and were not helped by traditional western medicine. Diet is a big one. William Li on You Tube also has diet suggestions.
Sugar "ignites cancer." I've managed to change my diet a lot and eliminate most sugar. I don't miss it as much now. However, it is in everything, salad dressing, etc. so not eleminating all of it. Fruit sugar, fructose, I am allowing. Nectarines!!!

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@jchantler Congratulations on starting this discussion with your oncologist. Congratulations on your marriage plans for September. It sounds like your oncologist provided you with the information you wanted. I'm tagging @denisestlouie because like you she advocated for herself with her doctors and she made lifestyle changes in exercise and diet.

You've written here the definition of Hope. Hope is optimism with a plan. The plan part means that you are not passively waiting for something to happen without effort but rather taking an active role by working with your doctors and in your own health and recovery.

A Fall wedding! What plans are you making?

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@jchantler

I just had that discussion with my oncologist today, emboldened to ask by our conversations here. I said, I would like to know best case scenario, worst case scenario, middle case, how long might I live? The uncertainly is really upsetting. We've been together 20 years and would like to get married in September. Will I still be alive then?
She offered congratulations and then said, "Some people with Stage 4 cancer live many, many years. Worse case, a year." A year is longer than I thought I had. A year is a long time - all the seasons. I am going to work hard a beating those odds. I am meeting with an excellent dietician , very knowledgeable. If chemo doesn't work -I currently have "mixed results." - I may try the Push Pause cancer treatment as exspoused by Dr. Thomas Seyfried. I have also been reading "Radical Remission and watching the free videos on You Tube. That is very encouraging. It is about the factors that people have in common who have survived stage 4 cancer and were not helped by traditional western medicine. Diet is a big one. William Li on You Tube also has diet suggestions.
Sugar "ignites cancer." I've managed to change my diet a lot and eliminate most sugar. I don't miss it as much now. However, it is in everything, salad dressing, etc. so not eleminating all of it. Fruit sugar, fructose, I am allowing. Nectarines!!!

Jump to this post

Hello, @jchantler

I am not at your stage of cancer. I hope never to be and engage in strategies similar to yours (diet, movement, perspective shifts) to improve my chances of preventing a recurrence of the endometrial adenocarcinoma I was diagnosed with in January 2023.

Just want to tell you how deeply you touched my heart just now when I read of your courage in starting that conversation with your oncologist that can be so important to you and possibly so difficult and painful for both of you.

When I read your reaction to hearing her say, “worstcase scenario, a year,” was “a year is a longtime -all the seasons,” my heart exploded with admiration and joy. “All the seasons.” What an important anchor to each moment you live (and love!) through.

I hope this life of yours, and all you are doing to care for your mind and body, including reading and sharing here, extends for many, many more seasons.

Thank you for opening my heart and mind this morning, jchantler. I am more grateful than I can express.

Wishing you well,

Gynosaur

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@sosophia245

Thank you for your reply. It’s good to know you did not suffer many of the side effects that go with the chemo. In anticipation of hair loss, I’m considering getting mine chopped so that effect won’t be as dramatic. I appreciate the tips on mouth rinsing and foot care. I’ll stock up now on baking soda. Chemo most likely will be followed by radiation but I’m not sure. I read that targeted treatment is not effective for USC —there’s so much info out there and I’m careful now what I read in the Web. I’m wishing you success and healing on your journey. Thank you again.

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Targeted therapy does indeed work for USC. Enhertu has shrunk my tumors by 58% since I started on the treatment in January.
I have stage 3C1 (2?) serous cell endometrial cancer. Carboplatin/paclitaxel didn't work, but Enhertu does.
I hope to report results of my next CT scan in three weeks time.
So far I've had 7 cycles of this targeted therapy.

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@cookercooker

Targeted therapy does indeed work for USC. Enhertu has shrunk my tumors by 58% since I started on the treatment in January.
I have stage 3C1 (2?) serous cell endometrial cancer. Carboplatin/paclitaxel didn't work, but Enhertu does.
I hope to report results of my next CT scan in three weeks time.
So far I've had 7 cycles of this targeted therapy.

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That’s great news about targeted therapy for serous cancer! Everyone is different and there’s conflicting information online (of course). I hope you continue to heal. Thanks for the info!

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@gynosaur42

Hello, @jchantler

I am not at your stage of cancer. I hope never to be and engage in strategies similar to yours (diet, movement, perspective shifts) to improve my chances of preventing a recurrence of the endometrial adenocarcinoma I was diagnosed with in January 2023.

Just want to tell you how deeply you touched my heart just now when I read of your courage in starting that conversation with your oncologist that can be so important to you and possibly so difficult and painful for both of you.

When I read your reaction to hearing her say, “worstcase scenario, a year,” was “a year is a longtime -all the seasons,” my heart exploded with admiration and joy. “All the seasons.” What an important anchor to each moment you live (and love!) through.

I hope this life of yours, and all you are doing to care for your mind and body, including reading and sharing here, extends for many, many more seasons.

Thank you for opening my heart and mind this morning, jchantler. I am more grateful than I can express.

Wishing you well,

Gynosaur

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Your reply really touched me, brought tears to my eyes, and brought my intuitive, smart Border Collie over to see why I was so emotional. She gave me kisses and I gave her hugs. Sending a hug to you, too! Thank you so much for sharing your open hearted reception and for you appreciation.
Funny, I checked this over for typos and I had written "brought tears to my ears." That bears thinking about, maybe a line in a poem or a surrealist song title.

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@naturegirl5

@jchantler Congratulations on starting this discussion with your oncologist. Congratulations on your marriage plans for September. It sounds like your oncologist provided you with the information you wanted. I'm tagging @denisestlouie because like you she advocated for herself with her doctors and she made lifestyle changes in exercise and diet.

You've written here the definition of Hope. Hope is optimism with a plan. The plan part means that you are not passively waiting for something to happen without effort but rather taking an active role by working with your doctors and in your own health and recovery.

A Fall wedding! What plans are you making?

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Thank you for volunteering and your comment about Hope is optimism with a plan. I love that!
As to our wedding we are going to keep it as simple and stress free as possible. With chemo my energy is very limited. There is a lovely restaurant right on the Columbia River with a pretty garden. They cater= one stop shopping. We are keeping it very small. Flowers on the table, some sort of mixer, a get acquainted activity for guests maybe and a brief ceremony.

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@jchantler

Thank you for volunteering and your comment about Hope is optimism with a plan. I love that!
As to our wedding we are going to keep it as simple and stress free as possible. With chemo my energy is very limited. There is a lovely restaurant right on the Columbia River with a pretty garden. They cater= one stop shopping. We are keeping it very small. Flowers on the table, some sort of mixer, a get acquainted activity for guests maybe and a brief ceremony.

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@jchantler Simple is always good. How nice that you will be married and have your reception on the Columbia River. What a beautiful part of Oregon. Hope includes your optimism and plans about your wedding too.

Will you keep me up to date on your treatment including chemotherapy?

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@cookercooker

Targeted therapy does indeed work for USC. Enhertu has shrunk my tumors by 58% since I started on the treatment in January.
I have stage 3C1 (2?) serous cell endometrial cancer. Carboplatin/paclitaxel didn't work, but Enhertu does.
I hope to report results of my next CT scan in three weeks time.
So far I've had 7 cycles of this targeted therapy.

Jump to this post

@cookercooker Good news about this targeted therapy. Thank you for sharing here as your post encourages other women in your support group.

REPLY
@jchantler

I just had that discussion with my oncologist today, emboldened to ask by our conversations here. I said, I would like to know best case scenario, worst case scenario, middle case, how long might I live? The uncertainly is really upsetting. We've been together 20 years and would like to get married in September. Will I still be alive then?
She offered congratulations and then said, "Some people with Stage 4 cancer live many, many years. Worse case, a year." A year is longer than I thought I had. A year is a long time - all the seasons. I am going to work hard a beating those odds. I am meeting with an excellent dietician , very knowledgeable. If chemo doesn't work -I currently have "mixed results." - I may try the Push Pause cancer treatment as exspoused by Dr. Thomas Seyfried. I have also been reading "Radical Remission and watching the free videos on You Tube. That is very encouraging. It is about the factors that people have in common who have survived stage 4 cancer and were not helped by traditional western medicine. Diet is a big one. William Li on You Tube also has diet suggestions.
Sugar "ignites cancer." I've managed to change my diet a lot and eliminate most sugar. I don't miss it as much now. However, it is in everything, salad dressing, etc. so not eleminating all of it. Fruit sugar, fructose, I am allowing. Nectarines!!!

Jump to this post

I've read the books you listed. I have come up with the theory that's it's all about how well our immune system is functioning. I've worked with dietians and a holistic doctor. We have explored how all of my body systems are functioning and what was cause on going low grade inflammation. I have some pretty different health issues to correct. But I did it. If we can get the right help for the right health professional we can improve our over all health. When are healthy our immune system will function properly.

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