Newly diagnosed and confused over treatment for lichen sclerosus

I use coconut oil on Amazon that is solid(waxy) at room temp and organic. Brand is not important.
I also use botanical coconut oil makeup wipes used to wipe genital area. Yellow package , 60/ package.
Sometimes available at Marshalls, always on Amazon.

I can only find on Amazon Europe & Ireland as closest region to me Biona Organic Pure coconut. You mentioned cream as well? is this different to the Coconut oil? Would be most appreciative for any more detail information. Also Botanicals makeup wipes must be on US site, as cannot find on Amazon other sites.

Sorry about the wipes, because they are soothing. Opt for the coconut oil, but the cream may have too many additives.

I am new to LS diagnosis. Can you all explain how coconut oil can work instead of a super strong steroid? What exactly is the steroid doing-reducing inflammation? Is the steroid cream preventing cancer? Can the coconut oil achieve the same thing? My dr. gave me literature that specifically said to not use anything else...no moisturizers, no other creams-just the steroid. Also there were instructions about not washing everyday and when I do wash only use water. I appreciate each of you for your help. This is quite a bit to learn about. Thank you all so much!

@echapman
Your suggestions are so practical they are very helpful!
"It's not the end of the world and you've done nothing wrong. It's just what it is and now how do you best deal with it."
I've lived with 35 years of chronic disabling autoimmune illness and LS in the past year has thrown me for a loop. In fact, I found myself feeling sorry for myself for the first time because of it.
Your post helps me remember that I've been through so much, plus a cancer survivor and will learn to cope with LS also.
100% of my struggles have depended on a change of attitude to learn to cope. That's where I end up finding "fantastic results,:"
Thank you for your post!

You really capture the feelings that have gone along with LS for me. I have Sjogrens Syndrome, many years, and thought it was dryness, itching from that. When I checked with my gynecologist, she told me these were "fissures" not just dryness. I felt discouraged and except for this forum, no one! wants to hear about a vulvar condition. I have other autoimmune, am a cancer survivor, but this is awful.

"Every time I get a flare, I feel defeated and worn out." I'm sorry for your suffering. Because you shared this, I feel less isolated. Thanks!

I see the side effects of steroids causing the very issues I want to avoid. I've used both the coconut oil as well as the jojoba oils versions of Lisepten. I get them direct from the company as it's less expensive that way. It provides instant relief and boy do I appreciate that right now

Thank you.

I hope you don't mind me commenting about hearing you have long covid. I recently heard that the nicotine patch has helped patients with long Covid Also if you have not heard about LDN (low – dose naltrexone) it is also a help for long Covid as well as many auto-immune issues. There is a website – ldnresearchtrustorg

Also a podcast, the LDN radio show

Wishing healing to all !

@echapman I can’t find Lisepten on the Canadian Amazon website.