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Profile picture for Justin McClanahan, Moderator
Moderator

Living with Fibromyalgia: Introduce yourself & meet others

Posted by Justin McClanahan, Moderator @JustinMcClanahan, Jan 30, 2024

Welcome to the Fibromyalgia Support Group on Mayo Clinic Connect.

This is a welcoming forum where you can meet people who know first-hand about living with fibromyalgia. Together we can learn from each other and share stories about challenges and coping strategies, setbacks and the things that help.

Find your comfy spot, settle in and introduce yourself. What is your experience living with fibromyalgia (i.e., treatment, symptom management, coping strategies, etc.)? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

Profile picture for bozzardi
bozzardi | @bozzardi | Jul 10 11:17am
In reply to @michelleak "Hello everyone, I live in alaska and was recently diagnosed with FM. It's been a ride..." + (show)
Profile picture for michelleak @michelleak

Hello everyone,
I live in alaska and was recently diagnosed with FM. It's been a ride and still going. I'm 52 and my job is physical which has been scary since it flares my arthritis and FM. I'll be honest I've been having a hard accepting the diagnoses since there isnt a real way of conclusively diagnosing. Also I'm to young (lol) to slow down which has been the most difficult to accept. I tried to get a referral to a rheumatologist but doctor refused so seeing a new doc Mon, just to find out today they dont see diagnoses of fm only. So far I have been reading all I can and following tips to manage symptoms. I declined medicines since they interact with my bp meds and my bp is doing good it actually lowered to point of decreasing meds since my first big flare up. So I'm prepared to work at this each day and continually asking God to keep me positive and thank him for the good in my life because there is so much. I used to be very active and outdoorsy and went on a short walk for the pain, which is mild today. Enjoying the beautiful summer and reminding myself I dont have to give everything up just tweak stuff a bit. Right my job is my biggest hurdle and worry. I look forward to sharing and hearing what all of you have to share. I'm glad this forum is here.

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My advice to you is……3 books by Ginevra Liptan MD she herself has Fibro…get these..find a lot of answers to your questions….
The Fibro Manual
Figuring Out Fibromyalgia
The Fibro Food Formula
Good Luck and God Bless…!!!!

REPLY
Profile picture for Becky, Volunteer Mentor
Mentor
Becky, Volunteer Mentor | @becsbuddy | Jul 10 9:30pm
In reply to @michelleak "I'm a month into this so far, I very feeling off for a couple years tho...." + (show)
Profile picture for michelleak @michelleak

I'm a month into this so far, I very feeling off for a couple years tho. So Im new and learing Im going to research the ketamine. Also I have a question, a ton actually, has anyone with arithis have their nodules on joint grow quickly. Mine did after first big flare.

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@michelleak Welcome to Mayo Clinic Connect! How do you feel about the ketamine? Are the doctors testing to see if it help your disease?
You’ve been feeling off for several years so what happened that made you want to see a doctor?

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Profile picture for brandic
brandic | @brandic | Jul 11 10:22am

Hello!! My name is Brandi and my daughter was diagnosed this week with fibro. She is 16. She is a competitive dancer. She has been suffereing from all over body and joint pain for a long time and we finally got into rheumatologist and he told us what has. We went back to her primary who prescribed some medication yestrday. We are hoping it helps some. As a mom I am researching anything and everything i can to help her.

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