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Pediatric neuroblastoma in the pancreas

Posted by 0083a @0083a, Jul 8 2:16pm

mi child 5 year old has a bib mas of neuroblastoma in the pancreas i want to avoid surgery can any one help me get a good clinical trial that works kemo doesn't work thanks

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Colleen Young, Connect Director | @colleenyoung | Jul 10 3:35pm
In reply to @0083a "let me explain u i did surgy in other places BUT in the pancreas it will..." + (show)
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let me explain u i did surgy in other places BUT in the pancreas it will harm the spleen and chemo did not respond only a BIT The pancreatic lesion was 2.2 x 2.2 cm in Feb, in June 2.1 x 1.8 which is a small decrease SO wen i harm the spleen in a cancer patient it is a hi chance to DEI also if it relapse IN IT IS A VARY HI CHANCE IT WILL BECUSE ALOT OV TIMES STAGE 4 IS RELAPSING it is vary dangers WITH OUT A SPLEEN AND now she still have CANCER NEAR her naik THAT woes not being ABLE TO REMOVE WITH SURGEY I am doing now 3f8 with small dose of chemo and proton radishen so i don't now wot to do IF the scans will cume out not good in the pancreas

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@0083a, you must be so worried about your child. For rare conditions, you may wish to consider consulting with Mayo Clinic experts at Mayo Clinic Children's https://www.mayoclinic.org/departments-centers/childrens-center

Here is information about how to contact them and request an appointment
https://www.mayoclinic.org/departments-centers/childrens-center/overview/appointments
You can also ask about eligibility for a clinical trial.

Here is more information about Neuroblastoma Care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/neuroblastoma/care-at-mayo-clinic/mac-20351025

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marienewland | @mnewland99 | Jul 10 3:40pm
In reply to @0083a "STAGE 4" + (show)
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STAGE 4

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Ok, thank you. Thanks excellent. It's funny or interesting to me how drs are spot on about longevity of procedures like radiation and also in your case, reoccurrence. Hoping you find the right path to treatment; you've got the right attitude !

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tstern7 | @tstern7 | Jul 10 5:20pm
In reply to @0083a "u hade nerblstmo that has 80 percent cume bake ? You can live just FINE without..." + (show)
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u hade nerblstmo that has 80 percent cume bake ?
You can live just FINE without a spleen

WITH OUT CANCER NOT WITH CANCER

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I don’t understand what you are asking. Please check your spelling.

I have neuroendocrine tumors NOT neuroblastoma. That is a different type of tumor. And YES I live a healthy life with NO spleen.

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0083a | @0083a | Jul 13 12:00pm
In reply to @tstern7 "I don’t understand what you are asking. Please check your spelling. I have neuroendocrine tumors NOT..." + (show)
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I don’t understand what you are asking. Please check your spelling.

I have neuroendocrine tumors NOT neuroblastoma. That is a different type of tumor. And YES I live a healthy life with NO spleen.

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neuroblastoma is extremely were in the pancreas i am looking for a family that had it there and news the best way to treat it

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0083a | @0083a | Jul 13 12:02pm
In reply to @0083a "neuroblastoma is extremely were in the pancreas i am looking for a family that had it..." + (show)
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neuroblastoma is extremely were in the pancreas i am looking for a family that had it there and news the best way to treat it

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I'm Brien Kushner. I'm at Salon. You may know a second place, maybe San Joe in Teensy. ?

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0083a | @0083a | Jul 13 12:06pm

stage 4 do u know a different doctor? jone mares from Chops Pennsylvania team I know I am looking specifically for the pancreas neuroblastoma stage 4 ?

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tstern7 | @tstern7 | Jul 13 1:32pm
In reply to @0083a "neuroblastoma is extremely were in the pancreas i am looking for a family that had it..." + (show)
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neuroblastoma is extremely were in the pancreas i am looking for a family that had it there and news the best way to treat it

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Surgery is the best way to treat dangerous fast growing tumors such as neuroblastomas. If your doctor said it’s inoperable, then ask the doctor what he or she would do in your situation. You may not find another person who’s experienced it. Good luck!

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0083a | @0083a | Jul 13 5:37pm

do u know any one alets in Son Jose Teensy?

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