New to exocrine pancreatic insufficiency (EPI): What helps?

I was diagnosed with EPI post COVID in 2022, lost 60lbs in 1 month and put on pancreatic enzymes.
My triggers are high fat ingredients (mainly good Omega 3 fats) that I can't do so I am currently doing Colestid (bile salt diarrhea) that they use post gallbladder removal and it works wonders.

thank you very much for your input. I will look into Colestid. I too, lost a lot of weight, was malnourished, particularly in the beginning but repeatedly during bouts of SIBO or loss of appetite/diarrhea.
Gosh, it is really is interesting because I started being symptomatic after Covid in 2020 and not one doc has acknowledged that this may be the cause. I feel I have been viewed as an alcoholic or whatever they have perceived ahead of time, so this is refreshing to know in your case.
I am wondering if this is becoming a more frequent diagnosis since Covid hit the scene.
Also, may prompt more research.
My big question...is it worth my travel/flight/hotel/cost/fatique to travel to the Mayo Clinic or is this really a condition of strict management, mostly on our own?

Had anyone experienced vitamin B deficiency with EPI? I do daily injections of B12 daily X 2.5yrs and still can't my levels above 180, 500-3000 is optimal. Especially neurological, they want in the 1,000🤷‍♀️
Also my B3, Niacin has been undetectable for the same length of time and all their is is oral supplements, I just stopped absorbing it.
Concerned about long term effects on both but no one has been able to figure out what is going on. Not my Small Bowel, Sprue, Celiac or anything simple.
Just curious 🤷‍♀️

I have recently been diagnosed with pancreatic insufficiency. I am taking Creon with meals. I also have long covid and did not have the pancreatic problems until after I was diagnosed with long covid.

After diagnosis (EPI) and taking creon, I went to see a wellness oriented nutritionist and it was then I started to really notice the difference with my overall health and recovery from weight loss and malnutrition. I now take a ridiculous and costly regiment of supplements, some prescribed by nutritionist and some by me. The more I read, the more I incorporate into my routine. It is concerning to not know if assimilation is at it's finest, but I know I feel and look better while taking the supplements. I would add, powder and liquid, sublingual if possible is best.
I have also benefitted from supplements that treat overall gut health like sodium butyrate and glucosamine for leaky gut. If your intestinal walls are not healthy (typical with EPI), then you will not absorb nutrients effectively.

Creon sounds like the really Expensive drug.$$$

I take VITAL supplements.
Take a small bite then Vital then eat.
Now I don't need 3 XS a day anymore. It depends on the type of food 'm going to eat.

My pancreatic insufficiency is much better now.

Good to know but I am 71 years old and Medicare pays 100% of the cost of Creon. I’m glad you found an affordable and helpful alternative.

wow! this means your Pt D or Medicare Advantage plan pays for creon in full. I'm in PA and just going on Medicare and a supplemental plan this year, looking forward to better coverage for creon and realize I have different choices in different states, but out of curiosity, which health insurance company do you have?
I priced VITAL after reading the post, but it would be too expensive compared to my current price for creon.

My Medicare plan is not an adantage plan and is through Aetna. I have a secondary plan through Physician’s Mutual.

I am new to EPI as well with no known cause. I have two CT scans and everything comes back okay. The creon had helped for awhile but no one had ever talked to me about my diet. I am so over senstative about my health and get concerned when I lose a few pounds and I know I need to. I just what the loose bowel movements to stop. Test after test test and no one is finding anything. Bills are piling up from the test. I have recently started Lexapro not sure if that is related. I do get an pain right in the center of my chest but never on either side. Blood test come back mostly okay and I had a little higher than normal blood protein but the two value are in check. Waiting on results for the rerun as it may have been stressed induced.