← Return to Mast Cell Activation

Discussion

Mast Cell Activation

Blood Cancers & Disorders | Last Active: May 27 8:45am | Replies (122)

Comment receiving replies
@nla4625

MAST symptoms -Shortness breath, air hunger, difficulty deep breathing

@yaramarthe gave us all an incredible Christmas gift by posting this article about MAST cell activation syndrome: https://hoffmancentre.com/mast-cell-activation-syndrome-histamine-immune-system-runs-rampant/. MAST cells are white cells present throughout our bodies that have to do with the immune system. When they are triggered and run wild, they cause all sorts of problems at every level -- heart, respiratory, circulatory, etc. The article actually lists symptoms by each system in the body. At various stages of our lives, different MAST cells can go off the rails and cause different odd symptoms and illnesses not picked up in routine blood tests. I've been reading a lot about MAST cells this weekend and believe this --and the type of medicine being practiced at this clinic whose term I can't recall --perhaps frontal? -- are 2 doors to answers a lot of us have been looking for. Whatever the name for the type of medicine this is, ie frontal, it is a systems approach looking for underlying root causes of medical issues. The inflammation et all caused by MAST cells run amok is definitely a root cause. Mayo Connect and the Mayo Clinic web site have information about MAST cell diseases; but on a brief reading it seemed they dealt with more specific rare diseases. At this stage of my learning, I need broad brush strokes. THE best site I found was by a scientist called Lisa. I think it was called askmast.com. I'm afraid if I close this to look it up, I'll lose the whole thing...but you can find it. I was thrilled to learn that Cleveland Clinic is practicing this frontal? medicine...they are in my neighborhood. Thank you yaramarthe and Mayo Connect for getting this information to us. Best wishes for a happy, safe, and healthy new year to everyone. Nancy

Jump to this post


Replies to "MAST symptoms -Shortness breath, air hunger, difficulty deep breathing @yaramarthe gave us all an incredible Christmas..."

@nla4625 You are excited to pass on an article related to MAST symptoms.

You will see that I have moved your question into a discussion where members are currently discussing MAST. I did this so you could more quickly connect with members like @pamandrewsrn @smbryce1 @slarson18 @megansims @huronshores who have experience with this topic and may be a good resource for you. I also encourage you to scroll back through the previous comments.

Below I have linked a another previous discussion about MAST that you may find interesting.
- Mast Cell Disease vs Carcinoid https://connect.mayoclinic.org/discussion/mast-cell-disease-vs-carcinoid/

May I ask if you have been diagnosed with MAST cell activation syndrome formally?