Thanks for sharing your story. I was diagnosed with Cutaneous Mastocytosis 5 years ago. I have so many symptoms of systemic such as headaches, chest pains, flushing, abdominal pain, allergies to hot and cold, etc. They have yet to diagnose it as systemic because most doctors I see don't know what tests to run. I tried getting into Mayo so that they can run tests and diagnose me but internal medicine rejected me. How did you get into Mayo for them to run tests and get a diagnosis? Always a frustration with this disease when so many know so little about it, so hoping Mayo will reconsider my request since they seem to be the only ones who know at least some information on how to treat the symptoms of this disease. Any advice is helpful.