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Looking Back - What Were Your Early Warning Signs of Parkinson's?
Parkinson's Disease | Last Active: Sep 25 3:54pm | Replies (101)Comment receiving replies
It sounds like he has the most important part---you! You are key to his care. Your encouragement and caregiving will truly benefit him. My husband is struggling now due to a lower back issue that has pretty much disabled him in bed. After being passed around by doctors, I went back to the spinal surgeon and pleaded with him to help me find the issue in his lower back and fix it. I explained to him how it was laying my husband up in bed for nearly 1.5 months now and he is unable to exercise to help his PD. I explained how the steroid shots from pain management don't work and only shoot his diabetes into the 400/500 range, placing him at risk for keto and other issues. They previously found a lipoma on the spine, but no one, except 1 doctor who was not in charge, wanted to eliminate it. I was not taking NO for an answer, and the spinal surgeon has agreed to help now. I spent 24 years as a Criminal Investigator and then went into nursing to help people, and I never said no. When they said things were impossible, I showed them things were possible. My husband's journey is my journey too, and I will fight the fight with him!
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I wish you all the best your husband is lucky to have you..
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I am thankful for your comments. My spouse had lower back surgery . He had a cyst pushing on the nerve. They found a foreign body . Sent both for confirmation of any Cancer, etc. He has melanoma insitu. He sees the dermatologist for evaluation. I requested the appt. and was able to get a referral.
By the way his back was degenerated disc's and herniated . We knew he had a herniation as I took to a Neurosurgeon. He did get several injections through the last few year's. He was in agony. I begged forever since 2018 for a referral to a Movement Disorder Neurologist. ..Our Neuro said it was not necessary! He retired last year and we were so surprised when our new Neurologist asked us if he had ever been to one. She explained that this is not unusual for older physicians. He did the usual Neurologist stuff and gave him Carbo-dopa Levadopa. I approached several times to no avail. He said get him into boxing ! No.. I did some research and found out our local YMCA had a Parkinsons Program and PT on staff. We went 3x a week. He did great.. Of course Covid stopped that. We had to get a revaluation and he went back. There was no PT on staff. Imagine that. But I knew his program as I worked out with him. Imagine that I didn't need help from a physician. I am so proud of how he has done since 2013. He is stubborn sometimes and I try to reflect the outcomes to him if he does nothing. Kudos to you for sharing and being a good Nurse.🫂