← Return to HCM getting worse?

Discussion
kay930 avatar

HCM getting worse?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 11 hours ago | Replies (17)

Comment receiving replies
Profile picture for whidbey @whidbey

I was not diagnosed with HCOM until I was 55 and apparently had it my whole life. I was always athletic, energetic, and never struggled with activity or breathing. Pulmonary Fibrosis is rampant in my family, so I went to a pulmonologist to be tested for that disease. He is the one who recommended I see a Cardiologist. I have severe mitral valve regurgitation and HCOM! Taking metropolol and Camzyos has changed my life. It is true that knowing what you have is half the battle! Once you have a drug protocol (or surgery, I suppose) you will feel better. I am so grateful for the medications that help me live a fulfilling life. Good luck to you as you discover what helps you!

Jump to this post


Replies to "I was not diagnosed with HCOM until I was 55 and apparently had it my whole..."

@whidbey so glad you are feeling great. If you don’t mind me asking, did your insurance help pay for Camzyos? I have Cigna and they refuse to help, they say it’s pre existing condition and that means I have a family history???? I don’t know o e single person in my entire family who ever had this! I don’t know what to do now.