Newly diagnosed and confused over treatment for lichen sclerosus

Hi Minnie23. You are doing many things to treat the lichen sclerosus. It can be so very uncomfortable. While Lichen sclerosus was ruled out with me, i did have the biopsy. Negative. However, I do deal with chronic mucositis in that area. I use Strata Mgt ointment (per my Mayo OBGYN). It is a wet wound barrier, and is applied under any prescription meds and moisturizers. It has been a game changer for my pain, inflammation, and skin breakdown. I have to order it, as it is not available on the shelf. This might help. Good luck!

I’ve had LS for over 20 years. The newer thinking is that steroid creams only dry the area out more, thin the tissue, and cause further cracks and pain. My Urogynocologist has now recommended Ozonated Coconut Oil and I haven’t had a lesion since February, using it twice daily, gently massaging it into the entire area that’s normally affected. (I just buy it on Amazon. It smells of Ozone, but it’s so helpful, who cares?)
I wish I had had this in the initial phase.
Stay on this forum! It can be so helpful to know others who are dealing with your same issues!

That's very helpful thank you for sharing. I have had LS for 12 years and have tried everything and was just about to go back to steroid cream which I didn't want to do, and I then see your message, so shall try this and hopefully can have an effect.

Would you mind sharing how the biopsy was? I was diagnosed without a biopsy and I am thinking I should really have one.

Hi Dorothy314. Since vulvar lichen sclerosus is considered a pre-cancerous condition (for vulvar cancer) they do the biopsy. Plus sometimes other things resemble vulvar cancer, like chronic mucositis in that area. The procedure itself was done carefully, and with minimal pain. They have you use a lidocaine spray to control pain after. Then the use of the strata MGT ointment facilitates healing of the tissue. The whole thing was quite tolerable. Fear was my biggest nemesis. Good luck!
Upartist

I have also had treatments at Coyle Institute in Pensacola, FL that helped tremendously. I live in AZ, so have to travel there, but Dr Coyle’s Tulip Procedure halts MY LS, removed scarring from over my clitoris, reopened fused areas that had nearly closed over my urethra. He talks to my husband about the importance of maintaining our intimacy via other methods.
The LS always has returned, but Tulip Procedure gives me great relief for a year in between treatments. I’m now using Ozonated Coconut Oil since my last procedure, and am lesion free for the past 4 months.
(I tried doctors in Tucson, Phoenix, Scottsdale, LA, and San Diego.)

I have also had treatments at Coyle Institute in Pensacola, FL that helped tremendously. I live in AZ, so have to travel there, but Dr Coyle’s Tulip Procedure halts MY LS, removed scarring from over my clitoris, reopened fused areas that had nearly closed over my urethra. He talks to my husband about the importance of maintaining our intimacy via other methods.
The LS always has returned, but Tulip Procedure gives me great relief for a year in between treatments. I’m now using Ozonated Coconut Oil since my last procedure, and am lesion free for the past 4 months.
(I tried doctors in Tucson, Phoenix, Scottsdale, LA, and San Diego.)

I also was diagnosed years ago and tired of using steroid creams. My gynecologist recommended coconut oil and wipes and it definitely helped. I' be used a coconut cream and wipes for 10 years and have had no flare ups or discomfort. Easy solution and worth a try.

I also was diagnosed years ago and tired of using steroid creams. My gynecologist recommended coconut oil and wipes and it definitely helped. I' be used a coconut cream and wipes for 10 years and have had no flare ups or discomfort. Easy solution and worth a try.