Does anyone have macrocytic anemia?

Hello, sorry I’m late! Nobody TOLD me the name of what we have!

I knew I can’t be “rare”. I think our diagnosis is simply not used as often as it should be.

Nobody anywhere thinks food could be the cure.

They just want more specialists to LOOK INTO THE CAUSE (born with the inherited condition / likely caused by maternal preeclampsia).

The shots are helpful for my condition, but red meat in the diet is the only way I get to feel “normal”.

Unfortunately I go through periods where I just can’t deal with it, so BEANS (legumes) are the next best medicine.

Sometimes protein powder or shakes are necessary.

My drs had no idea how much food can help with the symptoms and overall health. It’s WORK to feel well! Not easy for a FATIGUED person to do! But if I don’t, I just have a harder hill to climb.

I find, If I keep up with exercise, then I don’t have to rebuild wasted muscle.

Same thing with food. I try to keep up the protein if I wanna do stuff.

Don’t wait for a dr to tell you this - they won’t. That’s not what they study in medical school.

Today--July 6, 2025.... is an update to my original post of Aug 2024....my Bone Marrow Biopsy along with the CBC Blood Tests revealed I have a blood cancer : my specific type is "MDS" ⬇️ with with a "7q deletion" of my DNA. They have no idea what caused this ; there is no history of Cancer on both sides of my parents...and ancestors as far back as they knew of.

I have been going once.... weekly...since the original diagnosis of this since last Aug-Sept 2024....an injection weekly and added a diff one to the current weekly--on a once every 3 week basis. Two months ago I was tood I am Terminal...with approx maybe 2 years left....I start Chemo very soon.
I have lived a pretty good life so, no complaints....I will always remain positive...& I am a Christian &s tay true to my faith with prayer. I will continue to live as I have, for as long as I can. I have told my close friends & told them I do not want to see any changes in how they talk & act around me. I think they understand. "It is what it is"...so the saying goes.

"Myelodysplastic Syndrome (MDS) are primarily caused by genetic mutations within bone marrow cells, often occurring without a clear, identifiable cause. While most cases are idiopathic (of unknown cause), some are linked to prior cancer treatments (chemotherapy or radiation) or exposure to certain chemicals like benzene.
Here's a more detailed breakdown:
1. Genetic Mutations:
🎯...MDS arises from damage to the DNA within bone marrow stem cells, leading to abnormal blood cell production.
These DNA mutations can occur randomly or be triggered by other factors.
Several genes are frequently mutated in MDS, including DNMT3A, TET2, ASXL1, TP53, RUNX1, SRSF2, and SF3B1.
2. Prior Cancer Treatment:
Chemotherapy and radiation therapy for other cancers can damage bone marrow and increase the risk of developing MDS later on, known as treatment-related MDS.
3. Chemical Exposure:
Exposure to certain chemicals, like benzene (found in some plastics, dyes, and tobacco smoke), can damage bone marrow and contribute to MDS.
Other chemicals, such as those used in pesticides and certain industrial processes, have also been linked to increased MDS risk.
4. Other Risk Factors:
Age: The risk of MDS increases with age, particularly after 60.
Inherited Conditions: Certain inherited genetic disorders can predispose individuals to MDS.
Other Blood Diseases: Some pre-existing blood disorders may increase the risk of MDS.

Alcohol use accounts for the majority, followed by deficiencies in folate and vitamin B12, and medications. Autoimmune causes are more common in middle-aged women. Hypothyroidism and primary bone marrow disease account for more cases of macrocytic anemia in older patients.