Fire, burning sensation

Posted by julietmoore @julietmoore, Sep 22, 2023

My scalp, face , parts of my body always feels like I am on fire, not burning pain but feels more like my skin has touch a hot stove. I have had an MRI done,waiting for nerve test done in a couple of weeks. Currently talking gabapentin but not helping at all.

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I feel like I fell asleep on the beach and got a bad sun burn, but I don't even go out in the sun and the results are as I did. Everyday my skin peels very dry skin burning feeling all by not going in the sun. I would not wish this on my worse enemy. Nothing seems to help steroid shot any creams nothing. My hands are swollen peeling my neck burns and legs. Also, I itch to the point I'm I bleed. Need help has anybody else experience these symptoms.

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Profile picture for miketraff5 @miketraff5

I feel like I fell asleep on the beach and got a bad sun burn, but I don't even go out in the sun and the results are as I did. Everyday my skin peels very dry skin burning feeling all by not going in the sun. I would not wish this on my worse enemy. Nothing seems to help steroid shot any creams nothing. My hands are swollen peeling my neck burns and legs. Also, I itch to the point I'm I bleed. Need help has anybody else experience these symptoms.

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Have you been assessed by your doctors to rule out . Ask about complex regional pain syndrome . Yes experience similar working with neurologist don’t t know cause either . Gabapentin has helped along with stellette ganglion nerve blocks. I suffered failed ACD F surgery with other complications. I so much want to send a hug to you.

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Hi Juliet,
First of all, I am so sorry you’re going through this!
I’ve been having burning inside my head, my mouth, and through out my body for the last 5 years.
I have been diagnosed with Small Fiber Neuropathy within the last 2 years. I have been on Gabapentin and then Lyrica with no relief! I just started Cymbalta the beginning of this week. I’m not feeling any relief yet but I’m hopeful!
I pray you’re able to find something that will help!

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Has anyone considerd CRPS? Complex Reginal Pain Syndrome also nicknamed the on fire or suicide disease. K have lived with this for about 6 years now. I came here looking for answers but not even a support group. It is rare..

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Profile picture for jomammawu @jomammawu

Has anyone considerd CRPS? Complex Reginal Pain Syndrome also nicknamed the on fire or suicide disease. K have lived with this for about 6 years now. I came here looking for answers but not even a support group. It is rare..

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@jomammawu, there are many discussions in the Chronic Pain and Neuropathy groups related to Complex Regional Pain Syndrome. See here to join discussions relevant to you:

CRPS: https://connect.mayoclinic.org/search/discussions/
Complex Regional Pain Syndrome https://connect.mayoclinic.org/search/discussions/

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I’ve been experiencing the same symptoms for about two years. Most medications didn’t really help. About 10 months ago, I started a Brain Retraining program, and since then my symptoms have gradually improved. I’m still doing the program now, which includes breathing exercises, nervous system regulation, and mindfulness. Hopefully, we’ll be fully healthy again soon.

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Profile picture for jandy88us @jandy88us

Hi Juliet,
First of all, I am so sorry you’re going through this!
I’ve been having burning inside my head, my mouth, and through out my body for the last 5 years.
I have been diagnosed with Small Fiber Neuropathy within the last 2 years. I have been on Gabapentin and then Lyrica with no relief! I just started Cymbalta the beginning of this week. I’m not feeling any relief yet but I’m hopeful!
I pray you’re able to find something that will help!

Jump to this post

I’ve been experiencing the same symptoms for about two years. Most medications didn’t really help me. About 10 months ago, I started a Brain Retraining program, and since then my symptoms have gradually improved. I’m still doing the program now, which includes breathing exercises, nervous system regulation, and mindfulness. The program guided me remote by online. So I just follow them from home.
Hopefully, we’ll both be fully healthy again soon.

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Hi there,

How are you feeling now?
Have there been any changes?

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