Should i get an esophagectomy?

Posted by RickK @sosereal, Jun 22, 2025

Hello, I have posted for different esophageal items in the past. I would like your input on my situation. I am a 64 year old male, 2b adenocarcinoma. I have just completed my chemo and radiation, my surgery is scheduled for July 30. I question moving fwd. with the esophagectomy. I literally have zero support or care giver. My few friends are a few phone conversations and no face to face. For unknown reasons my adult children had ghosted me some time back, they know of my situation but have not acknowledged it or me in any way. I understand they have their own lives too but I have made every attempt to communicate with them to no avail. I also have 7 grand children I haven't seen in 3 years.
Honestly I feel as though I don't have much to live for due to my isolation, the surgery invasiveness, recovery, poor quality of life and a 30% chance of making it 3-5 years makes me question if its worth it.
.... For those of you who have gone through or may be going to go through your own surgery, please share your honest thoughts and insight. Shall I move fwd. with the surgery or take what time I get? What would you do?

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

Profile picture for goldenshadow @goldenshadow

One more thing to add you do have control of some of this. Your ability to control your attitude positive and your emotions grateful and also some exercise like walking. I was surprised how much that helps 1/2 hour a day was great or more. Best wishes !! Scott

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Thank you Scott. Ive been trying to get gym time in... As you mentioned, i understand it does make a big difference.

Thank you.
RickK

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I can’t imagine having to make all these decisions during treatment without a strong support system in place. I’m praying for strength and peace for you during this difficult time. I’ve added you to my prayer list.

My husband was diagnosed on May 30, and we’re still in the testing phase as the doctors work to create a plan to defeat his cancer. We’ve been experiencing a wave of emotions—this season of unknowns can be really scary. Just know you’re not alone.

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Profile picture for jmaaccg @jmaaccg

I can’t imagine having to make all these decisions during treatment without a strong support system in place. I’m praying for strength and peace for you during this difficult time. I’ve added you to my prayer list.

My husband was diagnosed on May 30, and we’re still in the testing phase as the doctors work to create a plan to defeat his cancer. We’ve been experiencing a wave of emotions—this season of unknowns can be really scary. Just know you’re not alone.

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Hello, Thank you!
I wish that your husbands prognosis goes as well as possible! You are in a tough place as a caregiver, hang in there through the roller coaster of emotions. I am happy for your husband that he has you. My heart goes out to the two of you and family. For my self as time goes on the reality is quickly sinking in. Decisions? Its a bit strange because to me it seems like I'm on a ride with out having much input as to the destination. But, we shall see where our journeys take us.
My greatest prayers and wishes!

RickK

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Profile picture for Lynn @cometsmom

Hi Rick, I was so struck by your post. I'm a caregiver for my husband with EC. I'm sorry you are in this position, with such a serious diagnosis and no support. My husband wasn't eligible for surgery so unfortunately I can't speak to that, but many here have had the surgery and are much better equipped to share that experience with you. I know they will chime in soon.

Where are you receiving your care? Most cancer centers have nurse navigators or patient navigators. They are invaluable and can assist with things like connecting you with many resources. Our NN was awesome and extremely supportive in every way. She connected us with social work, nutrition, financial assistance, palliative care, aftercare, etc. She was the go-to person, with the knowledge and resources we needed.

Do you have a navigator? Keeping them in the loop about the details of your social situation is really important, as they can and will help. If so, I highly encourage you to utilize them. If not, please inquire about it.

I understand your reservations about going forward with the surgery, especially with no support. Get all the info about services like home health aids, visiting nurses, other services your cancer center may offer. Talk to others here, and on smartpatients.com, another excellent group of patients and caregivers with so many different experiences, willing to share and offer support in whatever way possible. There are so many success stories, including ours! Knowledge is power...find out as much as you can about your options and stay connected through forums like this.

I'm sure others who have gone through the surgery will be on to offer their experiences with you. Glad you reached out. Peace

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Hi again, I apologize for the briefness of my initial reply.
The bulk of my treatment has been at Rochester Mayo. My surgery is scheduled with Shanda Blackmon at St Luke's / Baylor in Houston Texas.
The Mayo has put me in contact with a couple groups as well as some counseling which is nice. But there is no information for any aftercare, I am not sure what the Navigator is that you refer to?
I do have the support of yourself, others and my group which is a God send. I feel selfish and shouldn't whine because we are all going through a boat load of reality and crap to deal with.
Yes you are correct that not all the stories are bleak and i have had the privilege of receiving those replies. There is hope and my heart goes out to everyone dealing with there own journeys.
My greatest prayers and wishes for all!
RickK

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Profile picture for emersonmoon @emersonmoon

This makes me feel a little better. My husband just had his first scan post 4 rounds of Flot and it’s showing a great deal of shrinkage of the mass and no metastasis. We have an appointment with the surgeon next Monday and are nervous now. I know this is a major surgery and it’s scary, but it is what it is at this point. I’m just hoping and praying the next step goes well!

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Wonderful! I am very happy for your husband and yourself, every bit of good news is welcome!
FYI. The Mayo initially teamed me up with a surgeon that was not Minimally invasive / robotic certified. Please verify this with your surgeon.
I opted for the very best and searched out Dr. Blackmon who is world renown.
My greatest prayers and wishes!
RickK

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Profile picture for RickK @sosereal

Wonderful! I am very happy for your husband and yourself, every bit of good news is welcome!
FYI. The Mayo initially teamed me up with a surgeon that was not Minimally invasive / robotic certified. Please verify this with your surgeon.
I opted for the very best and searched out Dr. Blackmon who is world renown.
My greatest prayers and wishes!
RickK

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My husband’s surgeon told us he will be utilizing the robotic surgery. We meet with him tomorrow and will go over everything again. I’ve heard it tends to be easier to heal from. I wish you all the best in everything ahead and in the present moment. 🩷

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Profile picture for RickK @sosereal

Wonderful! I am very happy for your husband and yourself, every bit of good news is welcome!
FYI. The Mayo initially teamed me up with a surgeon that was not Minimally invasive / robotic certified. Please verify this with your surgeon.
I opted for the very best and searched out Dr. Blackmon who is world renown.
My greatest prayers and wishes!
RickK

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Hi Rick, I googled Baylor/St. Luke's to see if they have a nurse navigator program and they do. I wish I could attach the screenshot because it explains their role. Just google "does Baylor/St. Luke's have a nurse navigator program" and it should pop right up. Good luck

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