Anyone else have a colloid cyst on the brain? Symptoms?

If you're not afraid, then you're not normal. Being told you have a brain tumor has to be the scariest thing ever! It was for me!! I would do some research on the internet. Or better yet, go to the American Brain Tumor Associations' website. (ABTA.org) Gather as much information as you can about benign brain tumors. Learn about them. Become knowledge about them. So when you do see a neurosurgeon, you'll understand what the doctor is talking about & you'll be able to ask the right questions. If you're not comfortable with what this doctor says, you may want to seek a second option. I recommend starting a journal. Make sure to write down all your questions. Also, write down all your fears. This is a new chapter in your book of life. It could be challenging one, but don't give up! Stay strong! Stay positive!! It's hard to believe, but my brain surgery was 32 years ago already.

I had a recent PET scan for a lung nodule, and there was an incidental finding of a colloid cyst of the third ventricle. I’ve just read the lab report from the scan; my pulmonary doctor is out of town next week and I have a follow-up on 8/2. The report recommended referral to a neurologist and a dedicated head CT. I’m more freaked out by this news than my hyperactive lung nodule that could be malignant!

I do have frequent headaches and occasionally they’re sharp and stabbing. My other potential symptom is forgetting words, but that could be age (56) or menopause.

Scary stuff even if it’s benign.

@shoeho, waiting is so hard! I can't imagine what you are going through. Has a referral to a neurologist been made?

What size is your colloid cyst and where do you get the sharp stabbing pain? I was diagnosed with one two years ago and it was 5mm and a year later it's 6mm, I just started getting stabbing pains in the left side of my head, not sure if it's related but it's freaking me out!

Mine is 6mm and I'm still waiting for an appointment to see a neurologist.