@windwalker Hi Terri I’m really glad to hear from you too! Hope all is well with you. Your support and others on this forum and in my life is incredibly precious to me. I was supposed to go to Mayo in about a week but both Mayo and the doctors here don’t feel I am medically stable enough plus I still have a pic line in. We had it all arranged and am now canceling everything and waiting for my body to heal. I seen to be having these episodes every 4 to 6 weeks now. That is what we are hoping to prevent. I am worrying both last night and this morning and trying not to! I guess I’m scared of the disease I have now. I don’t trust my body to support me. We live close to a hospital that knows me and the disorder and knows what to do but each episode is life threatening. Now I have to work hard to get my strength back. I will of course but each time is a fallback and having to fight my way into strength, only to have another crash. Frustrated! I didn’t mean to complain so much. I have a great support system and medical care. I just wish we could figure this one out. Thank you for your virtual hug. So appreciated! Hope for your wellness and sending back a hug. Rhoda

All I have to give you is a prayer to the Great Doctor. Your Father Jesus. I prayed a simple prayer.

@rckj Dear Rhoda, you are still here, that speaks volumes about your inner strength! Will text you more later tonight. Sending prayers and healing energy your way.

@rckj Hey Rhoda! How is it going today? I am hoping better with each day. I am curious: what is the protocall for movement when you have adrenal issues? Do they want you to stay still and conserve energy? Or do they encourage some movement?

@rckj Hi Rhoda. I know being in the hospital can get boring, so if you have the desire and strength for chit-chat; you can privately text me. I don't want you to be doing it if it will be too draining on you though. More cyber hugs coming your way !

@windwalker nice to hear from you! The protocol varies depending on how I feel and vital signs. Just out of the hospital is lots of rest then physical therapy on a walker to help me regain strength. They come to the house with visiting nurse, which helps enormously. Sometimes I have to take additional medication to avoid a crash. It’s complicated for everyone in my life and me. I’ve slept a lot today but have also been working with physical therapy. I don’t want to be completely debilitated but it’s a careful balancing act! Rhoda

@windwalker even when tired, it’s nice to chat. I feel less alone with all the daily problems and decisions. Even though I have an amazing support system and a wonderful husband, it is still sometimes hard to cope. I will always keep fighting for my health because it’s in my nature but it does feel overwhelming sometimes. If I’m too tired to chat I’ll let you know, if I disappear for awhile it’s a good bet I’m in the hospital. I don’t know how to do private text on this site don’t know if it’s needed? But anyway, many hugs and thank yous Rhoda.

@rckj Are you home now?

@windwalker yes finally! I have visiting nurse 3 times a week home Physical therapy 3 times a week doctors appointments twice a week, my husband flushes my pic line every day and nursing changes the bandages on it. Whew! Lots of medical support and emotional support. This last hospitalization was hard especially the ICU part but everyone knows me now and it’s a good hospital which helps. Glad to be home with my husband, friends, cats etc.!!!

@rckj Great! I am glad that you are home now. You sure have a busy schedule! May I ask what they are having you do for physical therapy? Are you so glad to see your kitty cats?