1. < Headache & Migraine

Just started Qulipta-any experiences to share?

Posted by roseann4z @roseann4z, Apr 29 3:56pm

I have been feeling pretty awful with migraine, cervicogenic headaches and fatigue from those issues & breast cancer drugs. Was taking Nurtec with not great results but now been switched to Qulipta. I hate adding another daily drug to my already beat-up body (I am 71) Also this is all making me anxious & they want to give me another pill for that! Looking for some advice as to how to fight the fatigue and other side effects & wondering if the drugs are worth it. So far I’m not any better. On day 5 of 30 mg Qulipta. On Nebebolol beta blocker, Ibrance & Exemestane for cancer & a blood thinner. Thanks for any thoughts.

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jrsjc | @jrsjc | Jun 3 11:12am
In reply to @mojo244 "I was on Sumatriptan until I reached the age of 60. At 60 my doctor took..." + (show)
@mojo244

I was on Sumatriptan until I reached the age of 60. At 60 my doctor took me off due to Triptans being known to cause stroke in people over 60. It really didn’t help much anyway.
I was prescribed Nurtec and Quilipta but my copay is $400.00 for 9 pills per month so I opted out.
I have been getting Botox injections for a couple of years. It took a year to see progress and then another year before it stopped working. My last injections were delivered to my neck rather than head/face and it really helped for 2 months now into month 3 I’m back to chronic 10 pain. I’m looking forward to my next injections for sure. They can only do them every 3 months.
You might want to talk to your doctor about referral to a neurologist that specializes in migraines?

MOJO

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Good suggestion. The only other thing I that definitely helps the pain. I purchase Wellness Migraine Cool patches from Amazon. Put them on my forehead (works like an ice pack), and where a hat if I'm going out. It numbs the pain and allows me to function through the day. Otherwise, I wouldn't be going out. I'd be in bed. It has saved me.

REPLY
sjd416 | @sjd416 | 18 hours ago

Hi, I saw your comment about Qulipta. I started taking it about two years ago, after another therapy had stopped being effective. I liked that it was a daily tablet, AND it seemed to be working for my Migraines. I stopped taking it because it caused severe constipation. I was disappointed because it had been working well for the Migraines.

In addition, I noticed a loss of appetite and that I was losing weight while taking Qulipta. Although I could afford to lose a few pounds, this wasn’t the way to do it.

Although Qulipta helped the Migraines, the side effects, especially constipation, were more than I could tolerate.

I hope it works for you. It sounds like you have a lot on your plate, medically, so to speak, so best wishes.

REPLY
Jody aka mojo244 | @mojo244 | 9 hours ago

Have you asked your doctor about Botox injections?
Qulipta and Nurtec didn’t work for me plus the $400.00 copay for 9 pills per month wasn’t happening.
For me Sumatriptan worked but when I reached 60 years old I could no longer take them as they can cause stroke.
I started Botox and it took over a year to help and then about another year went by and it no longer helped. My NP decided to put my last injections into my neck and that brought my pain level down from a 10 to a 7 for 2 months and the 3rd month is back to a 10. I get my next injections next Monday so I’m hoping it brings me a couple good months again.
Botox seems to work well for allot of people, you might want to check it out?
Best wishes
MOJO

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