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Diagnosed with Meningioma in the right parasagittal frontal convexity

Posted by lctobey @lctobey, Mar 15, 2024

I was recently diagnosed with Meningioma in the right parasagittal frontal convexity measuring the size of grape and would like to connect with someone diagnosed with the same who has already gone through the process of surgery.

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subee | @subee | 3 days ago
In reply to @psawa "Partial hair removal but no big deal compared to the tumor issue. Still dealing with some..." + (show)
@psawa

Partial hair removal but no big deal compared to the tumor issue. Still dealing with some minor side effects of surgery and radiation, like balance, but gets better weekly. Had 7 weeks of proton after surgery to kill remaining tumor.

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please share more info on proton radiation ( why chosen vs photon) . side effects, etc
sueb

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subee | @subee | 3 days ago
In reply to @lctobey "Did you need to have all your hair removed for the surgery? How long before you..." + (show)
@lctobey

Did you need to have all your hair removed for the surgery? How long before you felt like yourself again. Will there me some kind of treatment because they where unable to remove all of it.

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did you have radiation . if so, type?

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1 reply
subee | @subee | 2 days ago
In reply to @subee "did you have radiation . if so, type?" + (show)
@subee

did you have radiation . if so, type?

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no, they carefully shaved a U top back of crown Top of hair covered it!

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subee | @subee | 1 day ago
In reply to @psawa "Partial hair removal but no big deal compared to the tumor issue. Still dealing with some..." + (show)
@psawa

Partial hair removal but no big deal compared to the tumor issue. Still dealing with some minor side effects of surgery and radiation, like balance, but gets better weekly. Had 7 weeks of proton after surgery to kill remaining tumor.

Jump to this post

Can you please tell me more about proton radiation v,s photon. Why was proton chosen? It is my inclination . I had the same kind of tumor . They were unable to get 100%. There has been a slight bit of growth.

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subee | @subee | 1 day ago

I have had surgery for meningioma in the same place, it’s a type 2.
1.5 years & there is a slight growth and will therefore need radiation.
The surgery was 4 hrs. I did not have side effects and have had a complete recovery . I still sleep on left side, right side is uncomfortable.
I was pleased with the surgeon & outcome of surgery. I’ve been told it’s the best place to have a tumor. The best to you. I’m sure it will go well!

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