Connect
Big 3 all at same time?
I'm starting the "big 3" soon and am curious about 2 things. One is about taking all of the meds at the same time (say a couple hours after evening meal)--for me, that's one azithromycin, 2 rifampin, and 4 (400mg) ethambutol. Who has success with that schedule, is that what your doc recommends? I picked up the drugs today, and got no guidance about that from my doc and didn't know to ask the pharmacist. Second question: I read that for my weight (about 55 kg), and taking meds 3x/week, I should be starting with 1200 mg of ethambutol. But doc has prescribed 1600; seems like a lot, given the risk of optical neuritis. I'm not going to start taking anything until I've had base line blood work done (in 2 days) and have my questions answered. I think patient experience is really important and value any input from folks here. Thanks!
Like
Helpful
HugInterested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Connect
I was diagnosed with MAC in March,I have been on the antibiotics for about 5 weeks, 3 times a week. So far no drug reactions. I am feeling better, and have a blood draw to check levels and also a sputum test this week. Looks like a long journey
Dean H
-
Like -
Helpful -
Hug
1 ReactionGood news that you have had no adverse reactions, and are feeling better! Good luck.
Hello, and welcome to Mayo Connect and our MAC & Bronchiectasis support group.
Have you also been diagnosed with Bronchiectasis, COPD or another lung disorder? Did anyone talk to you about doing airway clearance to aid in eliminating mucus?
I had a bronchoscopy, was diagnosed with MAC
I have been using a nebulizer morning and evening, this has been very helpful, using a 3 percent saline solution
The Aerobika has not seem to make a difference
If the Aerobika does not help, there are other methods of airway clearance. Here is an excellent video by Dr Pamela McShane, one of the experts in the field.
Wow. I’m so happy for you and so good to hear a success story. I am getting ready to start and terrified.
Shelly, I was wary and scared, too. I've just finished my 2nd week (3x/wk) of the meds and, so far, so good. No adverse effects at all (except for the bright orange pee!). For me, after having this question--to treat or not to treat--on my mind for nearly 14 years, it's a relief to be doing something about it. With time, I may experience side-effects, but I'm feeling hopeful and reasonably confident that won't be the case. May you have a similarly good beginning!
Well worth watching