Just scared: Cancer and scared leaving my daughter behind

Posted by hnreinhart12 @hnreinhart12, Feb 24 8:13am

My name is Heather, I am 38 years old. I had surgery/diagnosed on 10/9/24 with NSCLC adenoidcarcinoma EGFR 19. Non smoker. I have had multiple lung nodules for 15 years. We followed them for a few years, but due to how young I was and no smoking history, I was told they were benign, and follow up was stopped, unless I started having symptoms. I had bad chest pain before my surgery, which is how we found the cancer. During my surgery my largest nodule was 2.3cm with Visceral Pleural Invasion. I also had 3 tiny tumors around it, but all considered primary tumors. Therefore stage2b multifocal, I did not have lymph node involvement, no lymphovascular invasion, or airspace invasion. They believe the other nodules that have been stable for 15years are atypical adenomatous Hyperplasia. I am scared beyond belief. I have a 8year old daughter who is beautiful and she is autistic that I am scared of leaving behind. Chemo was not recommended. I went straight to Tagrisso. I don’t know what I am looking for my writing this.

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@arne

I was diagnosed stage 4 nsclc and had 4 yrs tagrisso 2yrs conventional chemo and some radiation. My focus is on healthy diet choices like green mushrooms green tea vit D and C. This is the 7th year on a 3 year prognosis. Stay positive as the meds keep improving and look at the things that can be controlled

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Congrats on 7 years @arne! I agree with your positive outlook. I've been taking the same targeted therapy (for ALK+ lung cancer) for the past five years, I was told that it may work for three. We aren't statistics, we're all different, and we all react to treatments in different ways. There is great promise in the future of lung cancer treatments and our lives depend on it.
Are you on any continuing treatment at this time?

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@lls8000

Congrats on 7 years @arne! I agree with your positive outlook. I've been taking the same targeted therapy (for ALK+ lung cancer) for the past five years, I was told that it may work for three. We aren't statistics, we're all different, and we all react to treatments in different ways. There is great promise in the future of lung cancer treatments and our lives depend on it.
Are you on any continuing treatment at this time?

Jump to this post

I had radiation on lymph node in chest Dec 2024 and am watching 3 month pet scans, The next is in Sept. Depending on scan another med could be used. I have been trying several things for diet and exercise and other therapy types I can do at home. I am feeling better this summer than I have in three years. Let me know if you have any questions on specifics. I figured I might as well experiment on myself. Time will tell if the efforts make a difference.

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