Living with Atrial Fibrillation: What are Your Experiences?

Posted by yeb @yeb, Sep 1, 2024

I’m 74 and have just been diagnosed with chronic atrial fibrillation. My pulse rate usually stays between 75-100 and I’m taking 5mg of Eliquis twice daily. My cardiologist says there are no good meds for this type of Afib. I’m wondering if I should consider cardioversion, ablation, or just live with it and stay on the blood thinner? Anyone have experience living with AFib long term?? Thanks!

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I have had AFib for a year or so and am on Metoprolol and eliquis. They seem to work well. I cannot take a Watchman because I am allergic to nickel. So all of a sudden I went into sinus rhythm for the past two weeks. I got back on stress and no caffeine. I am 82 and that is all I will do.

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My A Fib comes and goes and when it comes it is with brain zaps! Which makes it twice as frighting. I have told my doctor about the brain zaps but he doesn't reply , like he either doesn't want to talk about it or he doesn't believe me.

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@rosena123

My A Fib comes and goes and when it comes it is with brain zaps! Which makes it twice as frighting. I have told my doctor about the brain zaps but he doesn't reply , like he either doesn't want to talk about it or he doesn't believe me.

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what do you mean exactly?
I have AFib. I recently had a bout of amnesia that was preceded by a severe headache and vomiting. Neurologist I consulted said more likely to be seizure or migraine. No one related it to the AFib though I do take Lipitor and an anti coagulant to prevent strokes... so... what is a brain zap!!? to use your terminology.

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@oaktowninfogoddess

what do you mean exactly?
I have AFib. I recently had a bout of amnesia that was preceded by a severe headache and vomiting. Neurologist I consulted said more likely to be seizure or migraine. No one related it to the AFib though I do take Lipitor and an anti coagulant to prevent strokes... so... what is a brain zap!!? to use your terminology.

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Brain zaps are sensory disturbances that can feel like shock sensations in the brain. A person may also notice a brief buzzing sound and feel faint or black out momentarily ( I have never blacked out). My eyes seem to automatically close and I see bright lights and patterns in my field of vision. The zap only lasts for a few seconds but keeps repeating for a length of time. It seems that each time it happens it can be a little different, like the zap may be followed by a flushing feeling in your body that fades.
I know this is so freaky strange that it is hard to believe but believe me it happens. The not knowing what or why is terrible and scary.

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@rosena123

Brain zaps are sensory disturbances that can feel like shock sensations in the brain. A person may also notice a brief buzzing sound and feel faint or black out momentarily ( I have never blacked out). My eyes seem to automatically close and I see bright lights and patterns in my field of vision. The zap only lasts for a few seconds but keeps repeating for a length of time. It seems that each time it happens it can be a little different, like the zap may be followed by a flushing feeling in your body that fades.
I know this is so freaky strange that it is hard to believe but believe me it happens. The not knowing what or why is terrible and scary.

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Thank you for describing it. I haven't had exactly that symptom. I suppose your doctor is a cardiologist or your primary? It is hard to know what specialist to ask about it. Why assume it is the AFib? (Maybe because I don't think I am aware when I am experiencing the AFib most of the time). That reminds me to check with this group and see if anyone ever has a dark shade come over half of one eye. Or blurry vision occasionally in one eye. Over the years, I didn't automatically assume these were migraine symptom, because the migraine-related visual disturbances (usually called aura) I have had in the past is more like fractured vision, like not seeing all the words on a page because of spots. Usually preceded by headache, nausea, but not in recent years. Very confusing to figure out cause of symptoms -- whether heart, brain, or eye symptom.

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