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"Looking forward." Has PN taken that away from me, too?
This morning I had to psyche myself up. At 2, I'll be meeting a friend for coffee; he and I used to meet for coffee every Wednesday at 2 –– but that was before PN. In my journal this morning I gave myself a pep talk: "Come on, Ray, don't have second thoughts about having coffee at 2. You used to love having coffee at 2. Instead of trying to get out of it, why don't you try looking forward to it?" And that's when I realized, since PN, how few things I genuinely look forward to. The realization troubled me. Pissed me off, too. For the first time it struck me how "looking forward" is something I used to do about a whole host of things. Somewhere along the way (since my PN diagnosis) I'd stopped looking forward to things. Has that happened to you? Have you lost the instinctive eagerness for social get-togethers, weekend road trips, neighborhood block parties, Saturday shopping –– coffee at 2? Have you given in to the loss of "looking forward"? Or have you tried to do something about it? What have you done? And have you been successful? I'd love to know.
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Hmmm... i just noticed your name is signed with a 666 hmmm, interesting:)
I had my first softwave treatment Wednesday. will be going back. Only took a few minutes. Am curious to see if it actually can help regenerate anything. On the phone, I did tell the Dr.......after he said it doesn't always work, I told him, well, I'm 82, if you can make me feel like 72, I will be happy. As a lil old lady, who is in to anything alternative i am at 11 pm, sitting here with: a castor oil wrapped around one finger with a bone spur. After a couple of weeks, and using it every day, it did start to shrink just a little. then , as life does, i got busy and forgot to continue it. so, of course, boom, it's back a little bigger than before, so back to wrapping my finger all night, and days when i am home. I also now, have a large castor oil pack on my back, because i have stage 3 kidney failure. No pain or anything, just numbers from a blood test, so far. Will see if maybe after a couple of months my GFR readings will get better. I also, today, had my first Lyphatic massage. It is NOT for neuropathy, i went in for something else, but surprisingly, my legs feel a little stronger. Now , I am talking Today.......tomorrow, they could be back to a little on the weak side. One think i notice you have going for you , from your response is............you don't have memory loss, nor incompetency, you sound sharp as a tack. Ok, better than that............ummm, still wondering about 666
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3 ReactionsI’m enjoying this these discussions! I developed neuropathy from the cancer drug I’m on. One leg/foot is worse than the other. I haven’t really processed how to live with it yet.
Hi Ray. I am Fay. What is atorvastatin? Is it for neuropathy? Doctors told me nothing they can give me. I take Alpha Lipoic Acid purchased from Amazon and it helps with the burning pain. God Bless you.
Hi, Fay. Atorvastatin was given to me only in April 2024 not because of my neuropathy but because I had ended up in the hospital because of a septic infection. Frankly, it took me by surprise when I found that atorvastatin was now part of my daily pill diet. Here's a portion Mayo's definition of atorvastatin: "Atorvastatin is used together with a proper diet to lower cholesterol and triglyceride (fats) levels in the blood. This medicine may help prevent medical problems (eg, chest pain, heart attack, or stroke) that are caused by fats clogging the blood vessels … " I suspect, while I was in the hospital's ER and a treatment plan was bring drawn up for me, atorvastatin seemed like a reasonable preventative medication; not to make light of it, but in the hubbub of the the ER docs trying to figure out what was wrong with me, atorvastatin may have seemed like a "good idea at the time." I'm right now asking my primary doctor if I could stop taking atorvastatin since atorvastatin seems to have little involvement with my particular brand of peripheral neuropathy (no pain, just poor balance). I hope that helps.
My very best to you, Fay!
Ray
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2 ReactionsAtrovastin is for high cholesterol and causes neuropathy. There is no cure for neuropathy if there was we would all be healed. I have had neuropathy since 2002 it’s moved into my bladder and heart.
https://www.foundationforpn.org/wp-content/uploads/2024/12/Medications-that-Can-Cause-Peripheral-Neuropathy.pdf
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1 ReactionHi everyone,
Sure it's of interesting articles on Neuropathy!!! There are over 10 million of us, over 100 different neuropathies, and most persons seem to be affected differently and at different stages0 if there is such a thing?!
I am an 81 year old Vietnam Veteran who was way up North in Vietnam near the DMZ from 1968 to part of 1970 and I did a whole lot of weed spraying over the years with various properties I owned and never wore a mask or gloves so I am sure all of this has contributed to me terrible regression and state with supposed Peripheral Neuropathy and now just started with sugar diabetes!! My feet are always on fire and numb like my hands and arms, I get winded easily, and the pain is nearly intolerable!! I am highly allergic to meds so can't really take anything for pain, but sure use Sombra each and every day and night all over my body that gies me a little edge on same but nothing to write home about!
I have tried nearly everything there is to try and all the "snake oils" out there that are a complete ripoff and waste of time, bummer! From my many trips to the ER Rooms, all kinds of testing and doctor opinions we have ALL pretty much given up. I am pretty sure my auto immune system is shot, my myelin sheath gone, and my nerves getting constantly bombarded!!! If and when someone finds some genuine and serious aids to help with all this constant and horrendous pain I will be a very happy man!!! Sad but true, that is my story!!!!! Semper Fi.
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6 Reactionsplease try Alpha Lipoic Acid. you can get it at Amazon. It help me with the burning and pain somewhat. It bothers my stomach, so I eat before taking it. They have recently got this medication in a time release capsule, and it don't bother me as bad. I get Natrol Alpha Lipoic Acid time release 600MG 45 tablets. It is not expensive I think it was about $23.00. worth every penny to me. Good Luck
Have been using for some time twice daily along with NAC but no such luck said the duck!! Thanks for responding. Glad it works for you. Semper Fi.
I have no pain, balance is not so good. I have found if I walk fearful & carefull my balance is worse. If I charge like a raging bull my balance is better. I think my momentum is what helps my balance. I’ve always been a hiker @ if i was hiking up hill I was happy.I broke my back as a wild kid & think that has something to do with why I have neuropathy.
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2 ReactionsI also have a pair of Sketcher's with a wide Toe Box that are comfortable on my feet.