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Stopping ADT Scared and Anxiety Update
I met with my urologist/surgeon this morning. We discussed both him and my oncologist recommending that I stop ADT (Orgovyx).
Prostectomy+ Seminal vesticals+7 lymph nodes 01/2022
Gleason 9, Decipher .99, 1 lymph node positive
Started ADT on Orgovyx 01/2023 prior to radiation
Pelvic radiation completed 05/2023
Still on Orgovyx-- 2 1/2 yrs total, 2 yrs since radiation
PSA has been undetectable at < 0.01 since radiation (2 years now). Last PET scan a year ago is clear.
I'm scared to do it, but both drs say it's the right thing to do. My PSA will be monitored very closely and if PSA starts to do back up, we'll do a PET if needed and treat it. I think I'm in good hands. If cancer recurrs, treatment will be early.
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My husband is Gleason 9 Grade 4, No surgery, radiation in Feb 2023 for 10 weeks. Following started abiraterone 100 mg per day, prednisone and Lupron Depot every three months. Decipher .99. Undetectable psa.
Oncologist told us hubby will stop Abiraterone/prednisone and Lupron at the end of the year. We are worried. But we will follow instructions.
My husband is 80; how old are you?
Continued! And the cancer broke through the prostate capsule and was in the seminal vesicles and nerve bundles but no lymph nodes.
I am 62 now Miss . If no detection , thats a great thing !!!
It is fantastic! I am so glad for you. At 62 you have the best years of your life coming. My Doug at 82 is so comfortable with where he is and how he has lived, he is ready to go off the therapy. He will accept no further treatment. We both wish you the best of good health!
I agree with you. It is better to talk to doc about specific recommendations for medication. Zoloft is primarily an anti-depressant often used as an anti-anxiety med.
It's good to stop adt to know where you're at. You can always get scans if the psa rises followed by radiation and then as a last resort continue adt. This is a little off the wall but I believe adt is just killing you slowly a different way.
My father died of prostate cancer at 88. He died because lupron was the only drug at the time, and it failed. He died in an incredible amount of pain and for the last couple of weeks could not talk to anybody because the drugs to manage the pain had him so loopy.
This is a man who had his teeth ground down and crowned without Novacaine. Then he would come home for dinner and you never know anything was wrong.
I don’t care how the drug interaction is, dying from prostate cancer is worse.
Get him on Darolutamide, That drug alone may give him years. Speak to your doctor and ask for it specifically.
Thank you. I’m so worried. Let’s see what happens through the end of the year. I must say the aberaterone has given no side affects and has along with Lupron has kept the Beast at bay. I’m afraid of what it will be like when we stop. My husband is not at all like your Dad (or mine for that matter! But then again they were the greatest generation……
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