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DiscussionIs there anything to help stop or slow progression of MGUS?
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (138)Comment receiving replies
Replies to "Hello, What type of turmeric do you take? It's hard to find what is reliable with..."
@katrinarn24, I added Qunol Turmeric Curcumin Supplement @ 1000mg, twice daily to my regimen after first talking to my PCP, hem/onc doc, a Pharm.D and Connect members. Several MGUS discussion members recommended the Qunol brand. @circawdm is quite correct in saying that supplements are unregulated so we all have to do our own research. I have had no stomach issues.
After taking this supplement twice daily for about 1.5 years, my “numbers have stabilized to almost exactly what they were when I was first diagnosed. They had been climbing gradually.
I have type two diabetes as a coexisting condition as well as celiac disease, so I wanted to make sure that any supplements I add to my medication list are not going to cancel out the benefits of my prescription medications. Fortunately, there is a.Pharm.D attached to my PCP‘s practice so she called me with a list of my prescriptions and we went through them. She checked them all quite methodically.
My hem/onc guy has been quite dismissive about what I consider to be something to celebrate. He is a consummate empiricist (thankfully!). He will not recommend anything that he believes has not been thoroughly researched and validated. He is very cautiously optimistic about the benefits of curcumin, but is not ready to jump on that bandwagon. So my success so far is, in fact, pretty anecdotal, but I’ll take it!
Advocate for yourself as a patient. They are the experts, and I don’t dismiss anything that my doctors are telling me, but if something outside of the traditional approach may be beneficial, I will need to know what harm will there be in trying? Hearing none I will likely go forward.
Will you let me know how this goes for you?