Looking to connect with people who have non-diabetic neuropathy

I can relate to exactly what you are saying. I’m 65 and have ignored the symptoms because I’m dealing with numbness that goes from my feet up to the mid point of my thighs. I mistakenly thought it was due to my lower back spinal stenosis. I do deal with a lot of pain associated with neuropathy, some of which goes to behind my buttocks, which makes sitting very difficult. I’ve been on 150mg of Lyrica twice a day which has helped a lot with the tingling and stabbing pain. I’ve dealt with with this for so long, that the Lyrica has been life changing. Hoping you do well

My peripheral neuropathy is cause unknown.
It’s either genetic or idiopathic like yours.
I’m dealing with this since I was 60 and now im 63.
Been to many neurologists over the years with no relief.
Been on all the drugs and IV infusions like IVIG and nothing has helped me.
Those shocks that I would get make me yell out in pain, and my poor dog would run into another room.
I would get them in different areas of my legs and feet.
Sometimes it would feel like someone put my toe in a vice.
No one knows what’s like until they experience it themself.
What’s been helping me lately is Lyrica 50 mg 3 times a day.
Seems to definitely cut down those stabbing pains I was getting.
My feet and legs are still numb and I still have pins and needles,but they’re more manageable.
I’m starting Rituxan infusions at my neurologist in Sept.
He said if I’ve tried ABand C,then we have to go Rituxan.
Wouldn’t cover the med in Florida, where I was living.

Did lyrics cause weight-gain for you? I’ve heard it does for most.

I have peripheral neuropathy with severe pain in both of my legs and thighs. Gabapentin and Lyrica caused balance and falling problems. B12 injections seem you help but pain is constant when walking. Trying Barefoot shoes and added ALA and magnesium glyconate supplements. Nothing really works and the depression is real.

I've been dealing with PN a few years longer than you. And yes I've tried almost everything. My second TENS unit seems to be helping reduce (not eliminate) my foot pain. About as much as my Pregabalin (Lyrica) so it helps. Purchased a norelie RedRevide Therapy wand. Different strokes for different folks. Just keep trying things and don't give up. Stay away from chiropractors.

I have peripheral neuropathy with severe pain in both of my legs and thighs. Gabapentin and Lyrica caused balance and falling problems. B12 injections seem you help but pain is constant when walking. Trying Barefoot shoes and added ALA and magnesium glyconate supplements. Nothing really works and the depression is real.

I've done it all. Sanexas twice, a very expensive program with a chiro, laser, massage, all kinds of topical, diet, complaining to my spouse, I feel about 70% better. I'm not spending anymore on silly treatments. Do have a red light. Keep trying but not paying anymore for treatment.