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@harley22

My peripheral neuropathy is cause unknown.
It’s either genetic or idiopathic like yours.
I’m dealing with this since I was 60 and now im 63.
Been to many neurologists over the years with no relief.
Been on all the drugs and IV infusions like IVIG and nothing has helped me.
Those shocks that I would get make me yell out in pain, and my poor dog would run into another room.
I would get them in different areas of my legs and feet.
Sometimes it would feel like someone put my toe in a vice.
No one knows what’s like until they experience it themself.
What’s been helping me lately is Lyrica 50 mg 3 times a day.
Seems to definitely cut down those stabbing pains I was getting.
My feet and legs are still numb and I still have pins and needles,but they’re more manageable.
I’m starting Rituxan infusions at my neurologist in Sept.
He said if I’ve tried ABand C,then we have to go Rituxan.
Wouldn’t cover the med in Florida, where I was living.

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Replies to "My peripheral neuropathy is cause unknown. It’s either genetic or idiopathic like yours. I’m dealing with..."

I titrated up to 150mg 2 times a day with Lyrica and it has changed the quality of my life like I never thought was possible! My life was miserable, I’m also a chronic pain patient, so the last thing I needed was nerve pain from neuropathy!!
Ask your Dr if he thinks you could increase your dose. Next level would be 75mg then 100mg then 150mg so you have room to increase slowly.

I've been dealing with PN a few years longer than you. And yes I've tried almost everything. My second TENS unit seems to be helping reduce (not eliminate) my foot pain. About as much as my Pregabalin (Lyrica) so it helps. Purchased a norelie RedRevide Therapy wand. Different strokes for different folks. Just keep trying things and don't give up. Stay away from chiropractors.