Diagnosed with Meningioma in the right parasagittal frontal convexity

Partial hair removal but no big deal compared to the tumor issue. Still dealing with some minor side effects of surgery and radiation, like balance, but gets better weekly. Had 7 weeks of proton after surgery to kill remaining tumor.

Where did you have your surgery?

I will say my hair was not removed but I did have some hair loss due to the cut. I know it wasn’t for me but wanted to add my experience.

Who are you asking?

Prognosis is interesting, it’s an “all depends” scenario. It can’t be cured and needs regular MRI observation. Lingering effects exist but minor mainly balance is off a bit. Good luck and 🙏🏼

What’s the outlook? Do you still have any residual issues? Are you feeling better? Has your quality of life improved? Do you have a support group?

I had surgery on 2/1424 for a meningioma near my left optic nerve and carotid artery. The surgeon got the entire tumor out. I am going through occ therapy and speech therapy now. The entire event went very well. Hope all goes well.

Hi I has a 6 com type 2 meningioma removed 4 weeks ago, I had fluid build up in my forehead and on the right side of my head, it is slowly went away, I even had some on my sinus and eye area, did you have that? I’m so scared it will come back. You said it’s been two years for you? Has anything come back? Did you have to have radiation?

I have had several tumors like you described it Is in your Meninges ( outer layer of the brain ) about 30% of all brain tumors are non cancerous so we are very fortunate to have the kind of tumor that is easily removed. This type of tumor is very very slow growing so sometimes the Dr will recommend to just watch it, from the size of it you have a decision to either take a watch and see or have surgery. I was very fortunate to have had a good Neurosurgeon both times one surgeon that was all he did was brain tumors, I was only 49 yrs old . then I was visited with another tumor 20 yrs later (didn’t know that the surgeon had moved to New York then passed away so he didn’t follow up with me and another tumor showed up and then I went and searched for another surgeon and got quite lucky and found him and he came from John’s Hopkins surgical unit. Now don’t worry if you are going to decide to go the surgical route and your getting The Mayo Clinic to do your surgery you are extremely lucky because they will have several different doctors available for your procedure . Just make sure for the first few years you get an MRI each year by the time I found out about my last tumor it had grown to the size of a softball !! So I will tell you to relax and try to take sometime to reflect on just how fortunate you are not to be facing a cancerous tumor and pray about it but I can tell you that you will be asleep Throughout the whole thing and so it sounds a lot worse than it really is.

similiar experience. we are debating proton v.s photon radiation. please elaborate on your decision for proton. my radiologist recommends photon. i think proton. thx
sueb