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Diagnosed with Meningioma in the right parasagittal frontal convexity

Posted by lctobey @lctobey, Mar 15 10:27am

I was recently diagnosed with Meningioma in the right parasagittal frontal convexity measuring the size of grape and would like to connect with someone diagnosed with the same who has already gone through the process of surgery.

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Psawaski | @psawa | Mar 24 1:47pm
In reply to @lctobey "Did you need to have all your hair removed for the surgery? How long before you..." + (show)
@lctobey

Did you need to have all your hair removed for the surgery? How long before you felt like yourself again. Will there me some kind of treatment because they where unable to remove all of it.

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Partial hair removal but no big deal compared to the tumor issue. Still dealing with some minor side effects of surgery and radiation, like balance, but gets better weekly. Had 7 weeks of proton after surgery to kill remaining tumor.

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lctobey | @lctobey | Mar 24 2:43pm

Where did you have your surgery?

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1 reply
catv7 | @catv7 | Mar 24 9:31pm
In reply to @lctobey "Did you need to have all your hair removed for the surgery? How long before you..." + (show)
@lctobey

Did you need to have all your hair removed for the surgery? How long before you felt like yourself again. Will there me some kind of treatment because they where unable to remove all of it.

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I will say my hair was not removed but I did have some hair loss due to the cut. I know it wasn’t for me but wanted to add my experience.

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catv7 | @catv7 | Mar 24 9:32pm
In reply to @lctobey "Where did you have your surgery?" + (show)
@lctobey

Where did you have your surgery?

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Who are you asking?

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Psawaski | @psawa | Mar 25 10:32am
In reply to @catv7 "Do you have any lingering defects? How is your mental state? It can be a hard..." + (show)
@catv7

Do you have any lingering defects? How is your mental state? It can be a hard to live with all the things that come along with a brain tumor. I lost my job and have not quite recovered emotionally with that & I am still looking to work that paid comparable to what I earned before. And I still have no health insurance but I am working on that. Do you have a support group in your family & friends? What I does your prognosis look like?

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Prognosis is interesting, it’s an “all depends” scenario. It can’t be cured and needs regular MRI observation. Lingering effects exist but minor mainly balance is off a bit. Good luck and 🙏🏼

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catv7 | @catv7 | Mar 25 10:37am
In reply to @psawa "Partially resected. Surgery was fine but couldn’t get it all." + (show)
@psawa

Partially resected. Surgery was fine but couldn’t get it all.

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What’s the outlook? Do you still have any residual issues? Are you feeling better? Has your quality of life improved? Do you have a support group?

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jimmye | @jimmye | Mar 26 1:09pm

I had surgery on 2/1424 for a meningioma near my left optic nerve and carotid artery. The surgeon got the entire tumor out. I am going through occ therapy and speech therapy now. The entire event went very well. Hope all goes well.

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