WBC count keeps getting lower and lower

Patience was never my virtue! 😂 I really had to do a serious mental shift during my AML/BMT journey…retain my type A personality! LOL. There was nothing else to do but watch the clock…wait for results… so now, nothing bothers me anymore.

But when you’re waiting to get the ball rolling, this period of hurry up and wait can make a person rabid inside! You just want to get on with your life!
I don’t think I received word of my donor until after my 2nd appt with my transplant doctor, which was a month after my first meeting with him. The first appointment was my consult with him but also for blood work to get the DNA analysis started.
Those results can take several weeks so don’t despair. There’s a lot going on behind the scenes. You can always drop a note to your transplant team to see if there’s any updates.
After a donor list has been found it takes time then to cull out the most likely matches. When I sat down with my doctor at the 2nd appointment, he brought up my DNA numbers on his computer screen. Then a split screen with 3 potential donors. He zeroed in on one in particular, citing that this was his first choice. The donor would be contacted to see if they were willing to follow through with the commitment. That appointment was the middle of May. I think it might have been another 2 weeks before I was contacted that my donor agreed and we then had a target date of June 28th for the transplant. So, while your two weeks of waiting feels like 2 months, it’s not out of the ordinary for securing a donor. Hang in there!
I’m here if you need me for anything! Hugs!

I agree with you that being able to stay nearer your home with a team that you trust just feels right, This is a lot to go through and finding ways to simply your life right now and bring comfort is a huge benefit.

Patience was never my virtue! 😂 I really had to do a serious mental shift during my AML/BMT journey…retain my type A personality! LOL. There was nothing else to do but watch the clock…wait for results… so now, nothing bothers me anymore.

But when you’re waiting to get the ball rolling, this period of hurry up and wait can make a person rabid inside! You just want to get on with your life!
I don’t think I received word of my donor until after my 2nd appt with my transplant doctor, which was a month after my first meeting with him. The first appointment was my consult with him but also for blood work to get the DNA analysis started.
Those results can take several weeks so don’t despair. There’s a lot going on behind the scenes. You can always drop a note to your transplant team to see if there’s any updates.
After a donor list has been found it takes time then to cull out the most likely matches. When I sat down with my doctor at the 2nd appointment, he brought up my DNA numbers on his computer screen. Then a split screen with 3 potential donors. He zeroed in on one in particular, citing that this was his first choice. The donor would be contacted to see if they were willing to follow through with the commitment. That appointment was the middle of May. I think it might have been another 2 weeks before I was contacted that my donor agreed and we then had a target date of June 28th for the transplant. So, while your two weeks of waiting feels like 2 months, it’s not out of the ordinary for securing a donor. Hang in there!
I’m here if you need me for anything! Hugs!

I agree with you that being able to stay nearer your home with a team that you trust just feels right, This is a lot to go through and finding ways to simply your life right now and bring comfort is a huge benefit.

Good morning @drawlings0803. You and I are about the same size and I often felt my med doses were too high for my weight! Adjustments made a huge difference for me with some of the drugs and it looks like it has for you too! That’s really fantastic to have gone a month without a transfusion! Very encouraging!
We’d talked about your possibility of having an BMT. Any news on that front? Did you have a consult at MDA?

I would not speculate very much as to why your WBC is dropping. Of course it is a common thing to see WBC drop for a person dealing with any of a number of diseases or treatments for those diseases. However, from reading your query it doesn't sound like you are aware of any thing. What was the occasion that you received a Blood Count test in the first place? If you are not seeing an Oncologist then I would suggest that you do so rather quickly. If you are indeed seeing one and he/she doesn't see any reason for the drop, then I suggest that you get a second opinion. Much better to find the cause sooner rather than later. Best of luck to you.

My.WBC every year for the last 10 years have gotten lower and lower and lower and no one’s addressed it. I took my lab work yesterday and now it’s 0.0. I don’t even register anymore. And I just called in and I asked for my doctor that I’m going to see next week my primary care to do a cultured urine test because I have light pink still on my underwear that I’ve had for 10 years off and on and he told the nurse to tell me no that he would talk to me about it next week. We are only as good as the doctors are.

Hi @gospelstandards1. Welcome to Connect. I’m flabbergasted by your lab result of your WBC being 0.0! That is a very dangerous situation in which you basically have no working immune system.

Please consider getting a consultation with a hematologist who specializes in blood conditions. If you need a reference from your Primary care doctor, do so. And the urine test with a culture is a good idea, along with requesting a
CBC -With Differential. This breaks down the white blood count into the 5 types of white blood cells.

Are you frequently ill?