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WBC count keeps getting lower and lower
Blood Cancers & Disorders | Last Active: Aug 4 10:22am | Replies (37)Comment receiving replies
Good morning @drawlings0803. You and I are about the same size and I often felt my med doses were too high for my weight! Adjustments made a huge difference for me with some of the drugs and it looks like it has for you too! That’s really fantastic to have gone a month without a transfusion! Very encouraging!
We’d talked about your possibility of having an BMT. Any news on that front? Did you have a consult at MDA?
Replies to "Good morning @drawlings0803. You and I are about the same size and I often felt my..."
just to insert......it would be wonderful if physicians would consider the "size" of their patient when prescribing medication that is weight sensitive. I am 5 feet tall and weigh 93 lbs and have often received too much of a medication for my size. I always request tablets so that I can half the dose then proceed to full dosing if no problems.
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Interestingly, MDA never called me back. And you know, I just don’t have the energy to pursue it. I feel I am in the right place, & to make a change now is just too much for me.
STILL waiting on the transplant thing. The 2 donors who were good matches for me came in June 2 & 3. Transplant nurse told me it would take 2 weeks for analysis of their blood work. Well, it’s been over 2 weeks & I’ve heard nothing.
Can you say ‘hurry up & wait’?!
Do you recall how long it took for your match?
I just don’t know what to think & am starting to get really depressed. I hate being in a holding pattern!