1. < Epilepsy & Seizures

Hallucination or is that a fly on the wall?

Posted by tonyde @tonyde, Jun 12 1:18pm

I think I had my first hallucination 2 nights ago, at least the first one I can remember as a possible hallucination. I wait until my wife goes to bed and the house is quiet before filing my weekly pill box. I finished that and started doing a few other things in the kitchen before going to bed when a fly came in the room. First a buzz, I thought mosquito, it seemed to go away for a second when I turned my head, then came back. It followed me from the kitchen into the bathroom where it was flying 100 mph. I heard the buzzing but couldn't see the fly. It finally landed on the mirror and I caught in a cup and then it wasn't there. I heard it flying 100 mph again so I went into the kitchen to get Windex to kill the fly, it followed me flying around me at 100 mph, so fast it made me feel dizzy. It followed me back into the bathroom and finally into my bedroom. It landed on the bedroom wall. I caught it in a cup and then it wasn't there. That fly is sure fast to react. It felt surreal.

I realized the next morning that it was a possible hallucination.

Today I think it was funny that I tried to catch an imaginary fly. Now I need to find a good imaginary exterminator. Sometimes we need to laugh at ourselves.

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Leonard | @jakedduck1 | Jun 18 10:43pm
In reply to @tonyde "The doctor advised me to contact her should I have any other unusual activity. I'm ok..." + (show)
@tonyde

The doctor advised me to contact her should I have any other unusual activity. I'm ok so far.

The med change was from Lamictal to Lamictal ER. The hallucination occurred at he end of the 24-hour cycle. That shouldn't make a difference except it was a new drug and it may not have built up fully.

Tony

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@tonyde
When I started taking time-release medication my seizures stopped. I hope the same happens for you.
They often cut down or ease side effects.
Good luck,
Jake

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sungaltoo | @sungaltoo | Jun 19 6:34am
In reply to @tonyde "Your comment about needing protein is interesting. I've had some hypoglycemic events with my blood glucose..." + (show)
@tonyde

Your comment about needing protein is interesting. I've had some hypoglycemic events with my blood glucose below 50. However, the doctors have not been able to trigger an event and I haven't noticed a connection between my seizures and low blood glucose.

I did a Google search and it appears a seizure can trigger low blood glucose.

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That’s interesting because it seems low glucose would trigger a seizure not the other way around. I’ve had terrible headaches from low glucose and I always carry a remedy with me when I go out. I also bring protein to eat at the same time to prevent too much of a spike. I have to eat some every 2 hours or I start to wane fast. I’ve also have had a super fast metabolism and always been thin. I’ve been on an eeg many times and never had a seizure while on it. I have enough injury records after falling blackouts to document them though. My doctors have said they don’t know of a correlation between seizures and protein but it’s always been that way for me

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1 reply
tonyde | @tonyde | Jun 19 8:52am
In reply to @sungaltoo "That’s interesting because it seems low glucose would trigger a seizure not the other way around...." + (show)
@sungaltoo

That’s interesting because it seems low glucose would trigger a seizure not the other way around. I’ve had terrible headaches from low glucose and I always carry a remedy with me when I go out. I also bring protein to eat at the same time to prevent too much of a spike. I have to eat some every 2 hours or I start to wane fast. I’ve also have had a super fast metabolism and always been thin. I’ve been on an eeg many times and never had a seizure while on it. I have enough injury records after falling blackouts to document them though. My doctors have said they don’t know of a correlation between seizures and protein but it’s always been that way for me

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My wife has been a type 1 diabetic for more than 60 years, she can feel her glucose levels getting low and has been able to avoid diabetic seizures. That wasn't the case when she was younger. Have you considered getting a continuous glucose monitor to alert you to low levels?

I had a super fast metabolism when I was younger, weighed 116 pounds when I was 20. I could eat an entire large pizza or 1/2 pound of pasta and not gain a pound. I sure miss those days.

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1 reply
Mentor
Chris Gautier, Volunteer Mentor | @santosha | Jun 19 9:23am
In reply to @tonyde "The doctor advised me to contact her should I have any other unusual activity. I'm ok..." + (show)
@tonyde

The doctor advised me to contact her should I have any other unusual activity. I'm ok so far.

The med change was from Lamictal to Lamictal ER. The hallucination occurred at he end of the 24-hour cycle. That shouldn't make a difference except it was a new drug and it may not have built up fully.

Tony

Jump to this post

@tonyde
Good Morning!
It's reassuring to know your doctor has made herself available in case you have another similar episode. Hopefully, you won't need to reach out! 😊
Regarding XR versus regular AED formulations, from what I understand, the XR version releases medication slowly over many hours, while the regular formulation releases it quickly after you take it. Thus, XR formulations can potentially provide better seizure control since they maintain more consistent levels throughout the day. However, I've never personally switched between formulations of the same AED.
Has anyone else in our group switched formulations of the same medication – either from XR to regular or vice versa? If so, I'd love to hear about your experience. What positive or negative impacts did you notice after making the switch?
Thanks for sharing your insights!
Chris

REPLY
sungaltoo | @sungaltoo | Jun 19 10:46am
In reply to @tonyde "My wife has been a type 1 diabetic for more than 60 years, she can feel..." + (show)
@tonyde

My wife has been a type 1 diabetic for more than 60 years, she can feel her glucose levels getting low and has been able to avoid diabetic seizures. That wasn't the case when she was younger. Have you considered getting a continuous glucose monitor to alert you to low levels?

I had a super fast metabolism when I was younger, weighed 116 pounds when I was 20. I could eat an entire large pizza or 1/2 pound of pasta and not gain a pound. I sure miss those days.

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Yeah me too. It caught up with me though as I had a TIA in my eye. Cardio dr said both my carotid arteries to my brain were almost 70% blocked and I went on a statin, aspirin, diet and exercise to avoid stents at 70%. It worked but it took a year to get below 50%. Still have high cholesterol though after all the changes. He said it’s hereditary for me. Sigh. No more mac&cheese, pizza, ice cream etc. Healthy from here on out.

That’s a good suggestion for the glucose monitor. Maybe it’s that. It’s always normal on tests so I never considered it. But I’m looking for an answer and so far none of my doctors have come up with one. Thanks

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