Fatigue. No appetite. Taste problems. Salty lips. Phelm back of throat. Feel better in evening . Bowel problems. Sleep problems at night.Four weeks after the latest covid 2025. Does anyone know how long it takes to recover
jrg, so sorry you have had to try and tolerate this for so long. Thanks for sharing all the information. I will keep the Metoprolol in mind. Has your doctor tested you for histamine intolerance or Mast Cell activation syndrome?
One of my practitioners has LC too. She uses a nicotine patch. I think she says it helps with the racing heart. It is experimental. Some things to think about.
Thank you for the suggestion(s). I had a follow-up appt at my COVID Clinic this week. We discussed all that you mentioned. Got results on my TRYPTASE lab. We’ll see where it leads.
Thank you for the suggestion(s). I had a follow-up appt at my COVID Clinic this week. We discussed all that you mentioned. Got results on my TRYPTASE lab. We’ll see where it leads.
jrg,
The test part is partially cut off, but I believe it said your Tryptase results were high. So this is kind of exciting as maybe it will be helpful. I will be starting a mast cell stabilizer as soon as prescription is ready. Anti-histamines help some for a while. Unfortunately, I had a Tryptase test that was normal, but then I had been on a double dose of antihistamines for 10 days before which can affect the test. I was the one to bring up histamine problems to my practitioner. I am surprised that they all are not immediately checking out, with every LC patient, histamine problems.
jrg,
The test part is partially cut off, but I believe it said your Tryptase results were high. So this is kind of exciting as maybe it will be helpful. I will be starting a mast cell stabilizer as soon as prescription is ready. Anti-histamines help some for a while. Unfortunately, I had a Tryptase test that was normal, but then I had been on a double dose of antihistamines for 10 days before which can affect the test. I was the one to bring up histamine problems to my practitioner. I am surprised that they all are not immediately checking out, with every LC patient, histamine problems.
@sweetwater9
(If you click on the test image, it should open up for you to see it all. But yes, TRYPTASE is high.)
I got a call this morning about scheduling an appointment with an allergist. We’ll see what that uncovers.
Everyone is still learning, so it never hurts to bring up things that are milling about with our practitioners. It will take us all to get this all figured out.
I have only two that I can definately attribute to Covid. I had Covid in August of 2023, with a quick immediate relief with Paxlovid, but some lagging but not severe symptoms. Then in august of 2024 I had it again, and again quick relief with Paxlovid but lingering fatigue. I can no longer accomplish anything vaguely resembling "work". After 10 minutes of anything physically stressful, such as yard work, that I have always enjoyed doing, and I am done for the day, with much perspiration and exhaustion. The other symptom, which I have not seen mentioned here, is double vision. During my second bout with Covid I had 2 days of severe double vision, which decreased substantially over the following few days but never went away completely. The results, which the eye center in my town says they cannot do anything about, is that I can see fine looking straight ahead. However, when I look to the side by only using my eyes and not turning my head, after only moving maybe 15 degrees or so, I get double vision. A persons normal action is to turn your head and also move your eyes at the same time, and that is of course what I do, but it is that slight eye movement where the problem shows up. The only real problem it causes is when I am driving and stop at a stop sign. When I "look both ways", I have to close one eye to see clearly. Otherwise I don't know how many cars are coming or what lanes they are in. In this way I have now learned to cope with it without even thinking about it any more. Other than those two, most of my other issues seem to be more associated with aging. I am 81 but still fairly healthy, in general.
[Brain fog causes me to take much longer to read or compose. I just spent at least an hour* composing my reply here and at the last moment clicked the wrong button and erased it all. So here it goes again… sigh.]
LC 4 1/2 years
I have struggled with cardio-pulmonary issues from the start. Heart racing/palpitations, chest pain/pressure, with shortness of breath as a companion. Heart rate spikes and dips from 45-200 with little to no exertion. The accompanying shortness of breath felt like I was breathing through cheese cloth. A tilt table test resulted in Postural Orthostatic Hypotension (POHS) or Postural Orthostatic Tachycardia (POTS). Basically, a sudden decrease in blood pressure that causes a rapid increase of heart rate in response, after a change of position. Lying to sitting or standing. My blood pressure was averaging on the high side. To counter this my LC Clinic doc tried me on a lower dose of Metoprolol hoping it would lessen the heart and chest symptoms while not lowering BP to dangerous levels. It worked amazingly well for me. Average heart rate at 85-105bpm was decreased to 65-75bpm. Only your doctor will be able to assess if this is a treatment for you. I would discuss it at your next follow-up. Can’t hurt to talk about it.
Brain fog has been severe from the beginning and continues to this day. Since sitting and not moving my head much is my favored position, I don’t usually have trouble driving. However, if my trip is interrupted, and my focus deferred, by traffic delays or slowdowns, I can forget where I am or where I am going. For that I NEVER drive anywhere without my trusty GPS to keep me on track at the correct speed on the way to my destination. Even if I’m driving a familiar route.
Blessings on you! I hope this has been helpful.
[*Another hour to re-write. No wonder all my days are so unproductive… sigh]
You're very welcome. Something I can do from my recliner.
My trick is to always type out what I want to say (no matter how long it takes), instead of attempting to audibly voice my thoughts in real time. Speaking mostly makes me look ignorant. I really cannot have a comprehensive, adult conversation for all the word searching (without finding). Even with writing, I must have a dictionary handy - or wifi connected device so I can go to the internet to find my missing words. Usually by doing a lookup of synonyms until I find the word I'm looking for.
Thinking can truly be very exhausting.
Blessings upon you.
I'm a 55 year old woman. On June 6, 2021 I woke up and tried to get out of bed and I collapsed on the floor. I was disabled with severe exhaustion, brain fog, hand tremor, leg pain and could barely walk to the mailbox and back for 2 years. I started getting better in 2023 and in Dec 2024 I would say I was fully recovered. In Jan-April 2025 I was under severe, prolonged workplace stress that caused my symptoms to come back. Today, I have moderate PEF, general fatigue, brain fog , poor memory and trouble with word finding, can't do regular household tasks or drive, go shopping, even repot a plant from a nursery pot to a larger pot without exhaustion and being winded. I cried this morning. I'm so frustrated to be going backwards.
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Fatigue. No appetite. Taste problems. Salty lips. Phelm back of throat. Feel better in evening . Bowel problems. Sleep problems at night.Four weeks after the latest covid 2025. Does anyone know how long it takes to recover
Thank you for the suggestion(s). I had a follow-up appt at my COVID Clinic this week. We discussed all that you mentioned. Got results on my TRYPTASE lab. We’ll see where it leads.
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1 Reactionjrg,
The test part is partially cut off, but I believe it said your Tryptase results were high. So this is kind of exciting as maybe it will be helpful. I will be starting a mast cell stabilizer as soon as prescription is ready. Anti-histamines help some for a while. Unfortunately, I had a Tryptase test that was normal, but then I had been on a double dose of antihistamines for 10 days before which can affect the test. I was the one to bring up histamine problems to my practitioner. I am surprised that they all are not immediately checking out, with every LC patient, histamine problems.
@sweetwater9
(If you click on the test image, it should open up for you to see it all. But yes, TRYPTASE is high.)
I got a call this morning about scheduling an appointment with an allergist. We’ll see what that uncovers.
Everyone is still learning, so it never hurts to bring up things that are milling about with our practitioners. It will take us all to get this all figured out.
Best to you on this common journey we’re on.
I have only two that I can definately attribute to Covid. I had Covid in August of 2023, with a quick immediate relief with Paxlovid, but some lagging but not severe symptoms. Then in august of 2024 I had it again, and again quick relief with Paxlovid but lingering fatigue. I can no longer accomplish anything vaguely resembling "work". After 10 minutes of anything physically stressful, such as yard work, that I have always enjoyed doing, and I am done for the day, with much perspiration and exhaustion. The other symptom, which I have not seen mentioned here, is double vision. During my second bout with Covid I had 2 days of severe double vision, which decreased substantially over the following few days but never went away completely. The results, which the eye center in my town says they cannot do anything about, is that I can see fine looking straight ahead. However, when I look to the side by only using my eyes and not turning my head, after only moving maybe 15 degrees or so, I get double vision. A persons normal action is to turn your head and also move your eyes at the same time, and that is of course what I do, but it is that slight eye movement where the problem shows up. The only real problem it causes is when I am driving and stop at a stop sign. When I "look both ways", I have to close one eye to see clearly. Otherwise I don't know how many cars are coming or what lanes they are in. In this way I have now learned to cope with it without even thinking about it any more. Other than those two, most of my other issues seem to be more associated with aging. I am 81 but still fairly healthy, in general.
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1 ReactionThat you are writing at all is impressive and I'm grateful for your post. Thank you.
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1 Reaction@mohill
You're very welcome. Something I can do from my recliner.
My trick is to always type out what I want to say (no matter how long it takes), instead of attempting to audibly voice my thoughts in real time. Speaking mostly makes me look ignorant. I really cannot have a comprehensive, adult conversation for all the word searching (without finding). Even with writing, I must have a dictionary handy - or wifi connected device so I can go to the internet to find my missing words. Usually by doing a lookup of synonyms until I find the word I'm looking for.
Thinking can truly be very exhausting.
Blessings upon you.
I'm a 55 year old woman. On June 6, 2021 I woke up and tried to get out of bed and I collapsed on the floor. I was disabled with severe exhaustion, brain fog, hand tremor, leg pain and could barely walk to the mailbox and back for 2 years. I started getting better in 2023 and in Dec 2024 I would say I was fully recovered. In Jan-April 2025 I was under severe, prolonged workplace stress that caused my symptoms to come back. Today, I have moderate PEF, general fatigue, brain fog , poor memory and trouble with word finding, can't do regular household tasks or drive, go shopping, even repot a plant from a nursery pot to a larger pot without exhaustion and being winded. I cried this morning. I'm so frustrated to be going backwards.