there is no hope for me

Sorry that you feel that there is no hope @ariza9110. I'm sure there are others that feel the same way. It sounds like you have done some research but haven't found much beneficial information for treatment or management of the condition and the symptoms. Hoping others with some suggestions can chime in and share them with you.
I did find one research article from 2023 that seems to explain what you are experiencing and also lists some treatment and management strategies if you haven't already seen it.

-- Type I Hypersensitivity Reaction: https://www.ncbi.nlm.nih.gov/books/NBK560561/

A friend of ours was exposed to mold which compromised her immune system, many years ago. She found help in Texas, at a Clinic either in Tyler or Houston Texas, called Integrative Medicine. I won't go into details about her current treatment, but she is able to function with medicine and a carefully managed diet. She remains careful about what she might be exposed to when she is in public places.

Bless your heart!! I'm so sorry you are going thru this!! Back in 2000 I got exposed to black mold and developed "flu like symptoms" the doctor put me on penicillin.. (more mold!) and I developed huge hives all over my body with in a few days..I switched doctors.. and she put me on steroids for 2 years.. which I didn't now you couldn't jus t quit..(that was rather bad too) Years later a friend from Texarkana who had been exposed to black mold.. told me.. "you had black mold disease" I'm not sure what's it's called.. so now I am super sensitive to everything.. antibiotics almost killed me recently (had a UTI and 2took 2 of one kind and ended back in ER and 8 of another and back to ER and 11 of another and back to ER..luckily by now it has cleared up!! I really emphasize with you and your situation.. 25 years later.. and on going problem.. but I thank you for sharing.. now I know maybe why meds effect me so badly and I'm hypersensitive to alot of thing s I eat.. I wish I could tell you what to do.. praying you find answers.. and I'll watch to see..I need hlep too.. it's so debilitating!!

Excellent article.. so very helpful after 25 years I finally have some answers!! Thank you soo much for sharing!!

SOOOO sorry 4 what ur goin thru! i'll pray 4 u. I hate u feel u have no hope. u aren't suicidal, r u??? hang in there!

I’m loosing HOPE as well. I also suffer from Long Covid and my worst symptoms are loss of both taste and smell. It will be 3 years in December and I have come a long way from where I once was. Time is what we all need. Hang in there.

I understand what you’re going through. I have felt like that upon finding out I’ve been chronically exposed to mold several times, and with new sufferings and diagnoses of other diseases.
I have done what the doctors prescribed but also used a natural approach too. Now I use AI ChatGPT for research as it shortens time and is also comprehensive with results. I’ve added a lot of supplements after my research. I still have a lot of doctors but I’ve been able to maintain the same number of prescriptions without adding any more, which is a perpetual goal of mine.
I hope you can find a level of maintenance that is acceptable for you. Some conditions are chronic and there’s no solution as of yet. But technology is rapidly advancing and maybe they will find a solution in the near term

Please consider reaching out to 988 for support. You can call or text. If you are feeling like harming yourself please walk into an ER or call 911. There are people who care and will help.

Make sure your antibiotics are not mold derived (I,e, penicillin). Also some of the vitamins are derived from mold cultures.

I'm so sorry you're feeling that way. I don't have any experience with mold exposure, but I do have plenty of experience with brain fog, chronic pain from autoimmune disease, depression, and despondency. When my symptoms were at their worst, I felt the same way as you. I wasn't functioning any more like the person I used to be, and there were days when I struggled to get out of bed and felt it would be easier not to go on. During this period, my oldest tried to end his life after a 5-year battle of never-ending seizures. At 16, his doctor told him he'd probably never drive - just as all his friends were getting their learner's permits. He was involuntarily committed to an adolescent pysch ward for a month. Upon release, I enrolled him in Dialectical Behavior Therapy (DBT) course and went with him to the classes every week and did the homework as well. It helped him tremendously and today, he is a successful grad student in an occupational therapy master's program and wants to help others live their lives to their fullest and help them navigate their challenges. Incidentally, while he wasn't a candidate for any of the available surgeries at that time, he was subsequently implanted with a new kind of neurostimulator and a brand-new drug was introduced into his regimen, and a few years later . . . he became eligible for a driver's license! For me, the classes helped me to gain new perspective and reframe my thoughts; it has helped me cope on the really bad days.

I've never shared my story publicly with anyone, but I wanted you to know that people can deal with chronic illness, feel the way you've been feeling, and still move forward to find purpose in their lives. There is always someone who cares about you - family, friends, even a pet. For my son, DBT was life-changing. For me, it helped me to see a path forward, regardless. I hope you find more information within the forum from others, but while you search for answers, please also consider connecting with a mental health provider who can help you deal with how you feel right now. We once thought our son would never live a full, independent life, and in just a few years thanks to advances in medical technology, here we are watching him drive away to school every day. Please stay hopeful. Wishing you the very best. P