1. < Melanoma & Skin Cancer
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Malignant melanoma of the choroid in the eye

Posted by twocents @twocents, Nov 1, 2018

My husband was diagnosed with a malignant melanoma in his eye last May. He had a radioactive plate inserted in his eye for four days the beginning of June. The melanoma has a 50% chance of spreading to the lungs, lymph nodes and liver. Has anyone in this group experienced this diagnosis?

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tillymack | @tillymack | May 24 9:46pm
In reply to @eagleswings "This describes the study. There are no benefits for me, but my hope is this will..." + (show)
Profile picture for eagleswings @eagleswings

This describes the study. There are no benefits for me, but my hope is this will help with treatment of this cancer for the future. ABOUT THIS STUDY
This effort is to investigate cancers and
utilize many types of data to predict cancer
risk and progression.
Every cancer and every patient is different.
Patient Mosaic aims to understand those
differences.
WHY IS THIS STUDY BEING DONE?
Patient Mosaic is the first-of-its-kind effort
intended to extensively analyze cancers that
will help researchers develop new treatments
and personalize current treatments to each
individual patient for better outcomes.
HOW ARE YOU HELPING SCIENCE?
By choosing to participate in this study, you are helping to:
• Understand cancer better.
• Investigate the biology of your cancer, immunity and
microbiome, so we can develop better treatments.
• Accelerate and expand clinical trials.
Note:
1.You will not be billed or compensated in any form at any
given time during this study.
2.There are no benefits for you in this study and you will not
receive the results of the research testing performed as
part of this study. However, your participation and
findings from this research may benefit future patients.

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The NCI Why Participate in a Clinical Trial might be of interest.
https://www.cancer.gov/research/participate/clinical-trials/why-participate

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pandre01 | @pandre01 | May 25 2:24pm

I have experienced the same. Recommend keeping up light exercise, such as walking in parks or along your favourite beaches, or practising qigong - much has been written on the latter to reduce anxiety. I watch streaming videos to fill in idle time when I don't feel like exerting myself. All the best, Paul.

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kimisout50 | @kimisout50 | Jun 18 9:42am

It’s been 2 years since I had this done. No changes in all areas. I continue having CT scans and MRI’s. One day at a time.

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dan555 | @dan555 | Sep 7 7:02pm

I was diagnosed wirh the same diagnose 10 dys ago . Melonoma of the eye I have my 1st Petscan on Thursday.
Surgery with the plaque radiation.
What does the recovery look like as far as going back to work ?
I am a chiropractor and job is physical at times .
Dan

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Mentor
Susan, Volunteer Mentor | @grammato3 | Sep 8 6:48pm

@dan555 I'd like to reach out to welcome you to this forum, Dan, although while I have stage 4 melanoma, I don't personally have experience with this particular type. However, since I see you've not gotten any responses to date, I'm going to provide a link that may be of benefit as your prepare for treatment: https://www.mayoclinic.org/diseases-conditions/eye-melanoma/diagnosis-treatment/drc-20372376

In my previous work as a disablity nurse reviewer, I had dealt with out of work recommendations in conjuction with vocational experts, so please take this a general guide - your oncologist has the final say of course. As far as job requirements, I would imagine your profession is categorized as medium to heavy work as it requires being on your feet more than 50% of the time and lifting in excess of 20-50 lbs. In that case, you'd most likely be advised to be off work for up to 4 weeks. If you have short term disability, it may be worthwhile checking into coverage. Does that help?

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1 reply
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dan555 | @dan555 | Sep 8 11:09pm
In reply to @grammato3 "@dan555 I'd like to reach out to welcome you to this forum, Dan, although while I..." + (show)
Profile picture for Susan, Volunteer Mentor @grammato3

@dan555 I'd like to reach out to welcome you to this forum, Dan, although while I have stage 4 melanoma, I don't personally have experience with this particular type. However, since I see you've not gotten any responses to date, I'm going to provide a link that may be of benefit as your prepare for treatment: https://www.mayoclinic.org/diseases-conditions/eye-melanoma/diagnosis-treatment/drc-20372376

In my previous work as a disablity nurse reviewer, I had dealt with out of work recommendations in conjuction with vocational experts, so please take this a general guide - your oncologist has the final say of course. As far as job requirements, I would imagine your profession is categorized as medium to heavy work as it requires being on your feet more than 50% of the time and lifting in excess of 20-50 lbs. In that case, you'd most likely be advised to be off work for up to 4 weeks. If you have short term disability, it may be worthwhile checking into coverage. Does that help?

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Thank you appreciate it Susan .

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