The cancer was found on January 24, 2025, and I received the first Adstiladrin treatment on March 20, 2025. I had the initial TURBT for low-grade NMIBC in January 2024, Mitomycin and BCG through the spring, remission by June 2024, then discovery of high-grade, NMIBC CIS in January 2025 for which I did not have surgery, but received the Adstiladrin.
Starting my first Adstiladrin session on July 9th. Hopeful-----3 scrapings in the last 15 months. A total of 18 BCG--DARN STUFF JUST KEEPS COMING BACK.
@rjlpool502 You are correct to question your doctor's recommendation as to why he feels it might work this time. Taking charge of your medical care is necessary to receive the best of care. Perhaps a second opinion at this point? Adstiladrin was recently approved for bladder cancer that is nonresponsive to BCG and non muscle invasive. I would certainly ask your doctor about it. I don't know the percentages of success/failure, sorry. Good luck to you and remember that a second opinion, especially from a large cancer center or referral hospital is a valuable tool. My husband was unable to try this treatment as it was not approved yet, and now lives with a neobladdder, but so far cancer free.
informed today that I need to pick up some meds to take so I can refrain from peeing too soon after instillation of Adstiladrin, Anybody know what that is?
informed today that I need to pick up some meds to take so I can refrain from peeing too soon after instillation of Adstiladrin, Anybody know what that is?
I didn't receive any such meds after my first treatment. This is the first I've heard about them. I was treated (bladder filled with Adstiladrin), stayed in the doctor's office for an hour with my ability to pee prevented by a clamping device, then I was allowed to pee and was sent home.
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I’m not sure.
waiting to start my treatment with AdStiladrin - hopefully next week
Hope it is successful. I am due for my second treatment next Friday. It has been very effective.
How long after surgery did you have the first treatment?
The cancer was found on January 24, 2025, and I received the first Adstiladrin treatment on March 20, 2025. I had the initial TURBT for low-grade NMIBC in January 2024, Mitomycin and BCG through the spring, remission by June 2024, then discovery of high-grade, NMIBC CIS in January 2025 for which I did not have surgery, but received the Adstiladrin.
Starting my first Adstiladrin session on July 9th. Hopeful-----3 scrapings in the last 15 months. A total of 18 BCG--DARN STUFF JUST KEEPS COMING BACK.
So helpful to hear a positive--good luck!
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1 ReactionHow difficult has the neobladder proven to be?
informed today that I need to pick up some meds to take so I can refrain from peeing too soon after instillation of Adstiladrin, Anybody know what that is?
I didn't receive any such meds after my first treatment. This is the first I've heard about them. I was treated (bladder filled with Adstiladrin), stayed in the doctor's office for an hour with my ability to pee prevented by a clamping device, then I was allowed to pee and was sent home.